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CommentsWow, shame on me it has been way too long since I have updated. I have been receiving e-mails from folks asking how we were doing. Since I have last updated much has been happening. Initially, I had some up and down days. Symptoms that my liver was stressed led to testing. Had some negative reactions to tylenol. Test showed everything was okay and I have stopped using any tylenol. I guess I still have such sensitivites that I have to be aware of any negative reactions. High heart rates and resting palpitations led to some testing as well. Thankfully, the only thing showed that my thyroid was too high and we needed to reduce the presciption. Symptoms have greatly improved. My vit. d is still to low so, I'm continuing to address that. Hopefully, we have figured it out. I'm rambling on-thanks for sticking with me! When I went in for testing they had GREAT difficulty getting a vein. First day they just retracted. The next time after downhill hill skiing and digging the tech. found one!! Yeah!! I guess there is a lot of scar tissue. Over time they should heal. When I return to Reno for a follow up I will need to have a PICC line. At my most recent appt. my test results showed that my body is starting to come back. These were the Dr.s words. So much of my body has been effected by lyme that somethings have shut down. But, these tests are showing that they are starting to heal and beginning to work again. This was fabulous news!! It once again confirms that we are on the right path of treatment. I cont. to the homecare from Sierra and see my local Dr. periodically. Seems like he needs to always twick/change something with my meds. Thankfully, I am only one a few things. Not sure when I am returning to Sierra but, Michael and I do hope to go back in the next few months for a week. I am hoping to see zero spirochettes as far as the eye can see at least. The Lord IS soooo good!! This is by far the best spring I have had within the last few years. I have had energy to be at nearly all my kiddos activities. And there have been many!! We have had a beautiful spring in Kansas this year!! Love it!! I even felt well enough to help out with my daughter's school play. A friend and I had the pleasure of helping with choreography and make up!! I have to say it made me feel alive again!! Even though I still take it one day at a time, sit when I need to and sleep when my body demands it.....I have started being able to plan ahead. I am overwhelmed with gratitude. Lyme is a chronic battle but, with the Lord there is joy and hope. I am finding that there is life with lyme! This battle is ongoing and I remain focused on the discipline of sticking to the treatment and not giving up! It's been a long time since I have had any days where depression from it all set in. My pain has been well under control leaving me able to function. My expectations have been low as I really didn't know what to expect. I tell others I feel well enough to live again. Yes, there are limits. I only have so many steps I can take each day. And keep stress down is so important. Nothing can zap me like too much a negative thing. Makes me cling the Lord esp., in the roles as a wife, mom. daughter and friend. If I stay strong in Him everthing is okay! I am so blessed by the love and support that surrounds me. I know the depths of this disease and what it can do to a person and to a family. Because of the Lord and what He has provided and how He has sustained me I can press on. I was able to share my story with the soph. class at our children's school. I knew in His time He would provide these opportunites. This is certainly a part of my healing. It is overwhelming to relive all that has He has done through out it all. I was left in awwww, having clarity to share the scientific side and spiritual side to this trial. I pray it brought Him glory and awareness to this disease. May is Lyme awareness month! I hope that you will find out how you can help out in your local communites. Wear your Lyme green and tell others. Love you all for keeping up with the path that were on. So blessed to be in the Lord's will. All of you reading this who know this path well. Keep clinging to the Lord or call out to Him if you have not already done so. He is the way, the truth and the life!!!
CommentsWell, it's been entirely too long since I have last shared my heart with all of you. My amazing mom and my precious Lizzie reminded me it was time to share again. Lizzie is actually handing out this address to friends at school and church. I truly cannot wait to see what the Lord has planned for this precious gift. She has been sharing with others the needs in Haiti as she puts together care kits to be mailed through Heart to Heart. Recently she told her friends that we're probably going to adopt a baby from Haiti. I'm so amazed at how even through our trials, she can see that we have so much and are able to give to others. She truly believes in God's Word, that anything is possible with Him! Now she wants to do to the 3 day walk for breast cancer in honor of two women dear to our hearts. I think it's best to start with something shorter that she and daddy can do this spring and summer. In fact, there is one we would like to do in honor of the hemophilia patients my husbands new company cares for. He loves this new opportunity as he manages service managers, trains nurses, manages contracts with managed care and so on. I think he is fabulous at what he does and it always amazes me just how smart he is. It is such a blessing to have a hubby that really enjoys what he does and believes he's making a difference in the lives of others. He actually gets to know their patients and families and can see the direct results of what they are striving to do. This has been a new position for him this year and another way that the Lord provides for His children. As for me, well, the year started off really tough. In fact, it was so emotional for me to start another year still battling this disease and not seeing the results I was hoping for after so much treatment. I will be 40 this year!! For some reason, that doesn't seem possible. I'm too young to be 40!! Well, I've decided I'm not there yet, and I think about how great would it be to be free of this disease the month of my birthday. My hope remains in my Lord who has brought me to this point, and will continue to carry me through. With Him, there are no doubts. Because my immune system is attacking so many parts of my body, I still struggle with the same symptoms, particularly in the winter months. We continue to seek the Lord for wisdom on treatment options, and to stay aware of new therapies/treatments. As it stands, I'm continuing the same treatment protocol. Although it may not be glaringly obvious to all, my family feels confident that it's been effective in improving my overall health. Isn't it fabulous to be in the will of the Lord, safely in the hands of my Maker? I'm incredibly grateful for the leadership of my husband in all of this. I can lay my head down every night with no regrets, and the greatest hope and knowledge of knowing that I'm loved by the I AM who needs absolutely nothing to bring healing to my body. I've just started reading The Power of Prayer in a Believer's Life by Charles Spurgeon. I'm so excited to focus on this area of my life that I desire to strengthen. It starts with Hebrews 4:16: "Let us therefore come boldly unto the throne of grace, that we may obtain mercy, and find grace to help in time of need." This just lifts me up...simply knowing that as believer's in Jesus we can approach the throne of grace. I will do so boldly, fully confident that He hears my prayers, and above that, knows my family's every need. He has, He does, He will always provide!!!
CommentsTalk about not knowing what each day will bring for you or your loved ones. After writing my update we have been busy. I had one of the worst dizzy spells to date. Not sure why it happens but I am not worried. I will share it with the Dr. I was driving when it started by the time I was home and in bed, I had to hang one leg off the bed to keep the spinning feeling minimal. Then my poor lil guy was up throwing up at 3:00am. I hate to have to keep my distance and not be able to snuggle him. Being 11 he is very understanding. Then my car brakes gave out on me while at a red light. Thankfully, I wasn't moving at high speeds. I bumped the car in front of me but no damage thankfully. Praise the Lord the man I hit was a gentlemen. The crazy thing is that we JUST got the brakes repaired this week!!! Well, the car is back in the shop and I am hoping that never happens again. If your ever in that situation just throw it in park! UGH! Okay, then my poor hubby was up and sick. We all spent the day resting today. I felt pretty lousy. Probably over did it with all of the Holiday fun combined with fighting this battle and that yucky stomach bug. Thankful we all felt well enough to enjoy the fabulous kids Christmas program at church. The kiddos did so good and looked adorable! It was a great evening. Rejoicing for the Lords grace and mercy!!!
CommentsWell, I have been told it has been too long since I last updated so here I am now! It's not as if I haven't had much to share because the Lord is always working in our lives. We were incredibly blessed with a trip to Florida from Michael's folks. We spent six days in Tampa with our fantabulous family!! Our Aunt hosted 16 folks to a delicious Thanksgiving meal and we had much to be grateful for this year. The kiddos were thrilled to say the least to be with the family. They were spoiled with attention from their Uncle and their cuzzies!!! We surprised their Great Grandparents with this visit and made long lasting memories. Mia and I stayed an extra four days and first had a beautiful day at Honeymoon beach. She played, we found sea shells and I took in the beauty around us. THEN, Mom and Dad Dunbar took us to Disney World. We stayed at the lovely Polynesian Hotel and enjoyed three unforgettable days. I was pregnant with Mia last time we were there and being that the grandparents live far away they are planning lil trips like this with each of the kiddos. It was amazing!!! The Christmas decorations were incredible, snow falling on Main St., Christmas music playing everywhere. Much to my surprise at there were gospel singers, nativites and signs of Christmas all around. Mia received undivided attention and loved it yet, missed her siblings. It was great to focus on her and be able to enjoy this blessing. She esp. loved having lunch with the princesses the roller coaster in Toontown, the Grand Prix and The Mermaid and The Beauty and the Beast show. The lines were easy and the weather was perfect! It felt great to enjoy warm days and all the magic of Disney!! I share this with you because the last Thanksgiving we all shared in GA I mostly slept. In fact, Michael didn't think he was gonna be able to get me on the plane to head home. So, we are praising the Lord for the improvements that we are seeing. It is a slow journey but every good day is a gift from above. It was so great hearing how excited Mia's brother and sisters were for her. She had great fun sharing her pics!! The day after I arrived home I was spoiled along with many other ladies at my Mom's home. She and a few of her incredible friends encouraged and showed us importance of connecting as women abd hospitality. Okay on to the Medical update!! This past Monday with the Lord's provisions I was able to become a new patient of a local Dr. who is vastly knowledgable about Lyme. Although, I do have Thyroid, digestive, nervous system, joint and muscular problems etc. etc. they are not seperate issues. In fact, the are all connected and caused by Lyme. Only Dr.s who know this insidious disease and how it can effect people can accurately help lyme sufferers. It was a very long day and at the end of the appt. my veins collapsed during bloodwork. So, I will head to the lab on Monday and try again. The appt. went great and if I could of skipped out of the office I would have. Dr. ordered a lot of tests so in the near future we will address some concerns and see how my body is handling this disease. I was actually excited about this blooddrawal. There are certain markers that we haven't even tested for since first done two years ago because my symptoms hadn't dramatically improven. But, we have seen some now so we'll see. Time will tell what symptoms are irreversible. Although, I love my Dr. in Nevada it is so great to have one here in town esp., since they both know each other. Isn't God amazing!! I will continue to press on daily and at the one year mark of this treatment we will evaluate my progress. Daily I give thanks for what the Lord has done. I am grateful for having good days to be able to enjoy Meg's basketball games(not having to lay down on a nearby chair or couch or get texts from friends sharing the updates with me) and being able to go on field trips with the kiddos. What seems like something little has become huge in my life. Having Lyme has been so good for me because just as the Lord promises He does work all thing out for good for those that love HIM! He is my absolute hope. I can battle on only because I know it is not in vain and I know where I will be for all eternity when my time on earth is through. This is temporary!! I preach to myself daily not to get caught up in the small things or things of this world. I strive to choose what is eternal over temporal since my limitations continue to be present. I praise God for the hedge that He has lovingly placed around me for my own good and protection. This disease has showed me the amazingly and constant love of my husband, family and friends. It has showed me that my body is so wonderfully made!!! It has showed me that with the Lord anything is possible and as great is the pain and trial is-HIS comfort is greater!!! Above all, even though many others are sufferring physically, emotionally, spiritually, financially and within relationships at this very same moment; The Lord God in His omnipresence and omnipotent is able to minster to us personally!! How amazing to know that we can have an intimate relationship with the creator of the world at the same time as another child of God!! A friend recently shared Chapter 8 of Romans with me which, is one of my favorite chapters of the Bible. Please take time to read the fullness of this Ch. and dwell on His hope!! We have received our first check from our insurance. As you may remember we have had to pay out of pocket for the majority of my treament. The first check was $35.00. I do admit that Michael and I laughed but at the same time gave thanks. We continue to pay out $1,000 a month. My incredible husband through the power of the Holy Spirit NEVER complains. He thinks it is money well spent. :) The Lord continues to provide beyond our understanding!! We are infinitely grateful for the results from the treatment....above all we know it is by Grace alone.
CommentsYou Are Beautiful (In Every Way) from "Amazed" You Are Beautiful (In Every Way) You are beautiful Lord ,You are beautiful In every way You are beautiful You are beautiful You are beautiful You are You are beautiful Even in the shadow of the valley Your light will reach into the darkest place Even when a heart is cold and empty And it feels like hope is ending Your love remains Ginger Millerman How I praise the Lord no matter where I am there He is!! His love is unfailing and everlasting. There are moments that I cry out because I hate this disease and all that it takes from me. It is relentless and steals my strength, energy, time, money, desires and it strives to steal my hope!! That is where it stops for I know the Lord is greater that this incurable disease. That is when I am reminded that it is not about me or what I can do in any circumstance; it is all about Him and what He can do through me!! When I look in the mirror I see fatigue and sickness. In the stillness and with every step every part of my body cries out in pain. I am forever grateful for it matters not what man sees for I know when God looks down He sees perfection. ONLY because of my faith in the Lord Jesus Christ! My savior!! My God in all of His holiness could never look down upon my sin; but because Christ willingly gave His life for me by the shedding of His blood I can forever be in His presence!! Therefore, let us draw near with confidence to the throne of grace, so that we may receive mercy and find grace to help in time of need. Hebrews 4:16 My son reminded me last night while talking in the kitchen-we may get down Mom-things might even see impossible-but as followers of Jesus we do not stay there!! So true!! By His grace alone!!! Today, I am joining my mom and her dear friends to Parkvile for some fun, unecessary shopping!! Tonight we are planning fellowship with dear friends. Life is good because the Lord is amazing!!!
CommentsHi ya'll!! I have continued to have many good days. There have been only two days where I had fatigue and nausea. Some mornings have been slow but I am incredibly grateful to say that I have been blessed with lots of great moments in each day. I think those days were a result from a herxheimer reaction. In fact, looking back on those several weeks were most likely the same thing. A herx is an immune response to the body killing off pathogens. Basically, you have to feel worse before you can feel better. It is actually a good thing-showing signs of the body ridding of the illness and the build up of toxins. I have to admit that it is horrible to go through esp, when it last for several days or even weeks. This week it happened each day following one of my differ therapies and only lasted one day. For that I am so grateful. These reactions can worsen every symptom plus add new ones. It can just make you feel miserable like you have the flu. Just part of recovery process. I didn't get this sick overnight and I am frequently reminding myself that getting well again will also not happen overnight. In the midst of those good days I enjoyed a day off of school with my kiddos, dinner and games at our dear friends the Gingrichs and today meatloaf sandwiches and fellowship with Ben and Becky. LOVE feeling well enough to be with our friends and family!! Even if I couldn't get off the couch I would love it!! It is nice to actually be able to enjoy it and participate. I was quite naughty as I enoyed some homemade mac n cheese and derby pie!! Oh yay, and my pain has still been very tolerable. YEAH!!!! I cannot even express what a difference that makes. A friend had asked recently what my pain was like. Sure I can have some weakness in my muscles, sore muscles (even when I am not active),achy joints and esp, my back. BUT, my real intense pain is more like a nerve pain. I do not remember waking up without this sensation. It is constantly there and widespread. It is either dialed down or up....meaning at times things trigger it and it becomes unbearable/inescapable. I have been praying for the Lord to make it clearly known what I can do it lesson it....not trigger it. Weather changes, stress, diet anything and too much sugar def. causes problems. I cannot change the weather patterns but I do limit everything else. There are times when I think I am doing all the right things and it doesn't seem to make any difference. In those moments I cry out and He hears me!! A friend asked how do you not overdue it on the days you feel good? I feel like a kid on Christmas morning in every one of those moments. I normally can't go past 3 hours without stopping, sitting, resting...you get the idea. The biggest thing is what to do?? Whatever is the most imp/priority first and then who knows. It is wonderful to get to choose!! My injections are going well-no complications. I am and have been struggling with deydration. Even though I drink nearly a gallon of water daily. My body doesn't seem to asborb it or food properly so we are striving to tackle that. We seek wisdom from the Lord daily. I have been so uplifted from my time in the word. Focusing on the Lord and on truth is nothing but rewarding and fabulous!!! Without Him, I ask what do you hope in?? What causes you not to give up?? When your body is broken and you no longer have the endurance what/who is your strength?? Everything else will fail you it is by Christ alone! This week we have been given many prayer requests. Some which are indescribable trials to face for even the strongest of believers. So what do you do when you stand on nothing.....what is your foundation?? Nothing in the world happens by chance. Our great God has "measured the waters in the hollow of His hand, mea-sured heaven with a span and calculated the dust of the earth in a measure"(Is. 40:12). Because of Him we can sing praises in the fiercest fires. "Fear not, for I am with you; be not dismayed, for I am your God. I will strengthen you, yes, I will help you, I will uphold you with My righteous right hand" (Is. 41:10). May you rest in the knowledge and comfort of Jesus!!
CommentsToday was a very good day!!! Yesterday was good too. In fact, I have had quite a few moments over the weekend and into this week where I was nearly in tears. I was with the family doing something and then realized my pain level is WAY down. I am SOOOOOO grateful! The Lord has given me this blessing. Oh, how He knows just what I need and when. It feels fabulous being able to share this with all of you!!! Please praise Him with me!! I was able to enjoy Ry's birthday and Meg's on Sunday. We officially have a teenager-how can that possibly be!! I was even able to be blessed by hearing Lizzie and Meg at their piano recitals. AND my hubby swept me away for a date tonight.....love those weeknight surprises. What a great time and long overdue. Grab the moments that your given. My heart is overjoyed as the Lord continues to provide for us throughout this trial. Thank you to my dear sister, Becky for sharing time with me today. Being with you is always fun and uplifting!! We have used this reprieve to take into account all that we are doing and pray for wisdom for any changes that need to be made. I have started journaling hoping to notice anything that causes the symptoms to worsen. I still have so much to learn. striving to focus on what I have and not what I do not possess. Trying to look at my lil appts. as opportunities to bless other and take one step closer to regained health. As followers of Jesus we can rejoice in the truth that we are His and He is ours. Poor as we are, we are infinitely rich in having God. Weak as we are, there is no limit to our strength since the Almighty Jehovah is ours. spurgeon. "If God is for us, who can be against us?" Romans 8:31 no matter what tomorrow hold the Lord has already gone before me. May I hold fast in knowing that having Him is all that I need. Thank you for sticking by me as I battle on. love you all!
CommentsEleven years ago we welcomed the arrival of our son, Ryan Michael. He is a wonderful son; always looking our for his mom. Can't believe I can rest my head on his shoulder. Happy Birthday Ry!!! Hoping for a great family weekend.
Comments"Praise You In This Storm" I was sure by now God You would have reached down And wiped our tears away Stepped in and saved the day But once again, I say "Amen", and it's still raining As the thunder rolls I barely hear Your whisper through the rain "I'm with you" And as Your mercy falls I raise my hands and praise the God who gives And takes away And I'll praise You in this storm And I will lift my hands For You are who You are No matter where I am And every tear I've cried You hold in Your hand You never left my side And though my heart is torn I will praise You in this storm I remember when I stumbled in the wind You heard my cry to you And you raised me up again My strength is almost gone How can I carry on If I can't find You But as the thunder rolls I barely hear You whisper through the rain "I'm with you" And as Your mercy falls I raise my hands and praise the God who gives And takes away I lift my eyes unto the hills Where does my help come from? My help comes from the Lord The Maker of Heaven and Earth My pastor's wife and friend reminded me of this song today. It has ministered to my sould several times throughout this trial. I love the chorus. Although my heart aches and we are still in this storm it is by Him alone that I can weather this storm. As I think I have not one more step in me he lifts me up again and reminds me He is there. I will not give up and not stop praising the ONE who knows my every tear and helps me to face each moment. His knowledge is infinite. He alone is worthy!!!
CommentsHad nearly two good days. Tonight the pain hit hard. Trying to just breathe and not let my thoughts get away from me. Praying for peace and wisdom in the storm. This is only temporary-it will past. Breathe Jodi breathe. Yay, I sometimes talk to myself. Hehe My days have been quite humorous. I feel like an elderly person. On Monday I go to the Chiropractor, On Tuesday I got for lymphatic massage and sauna, On Wednesday I go for a colonics.....you get the picture. Oh, to live such a glamourous life. I am just thankful that the Lord is providing the means to do it and most of the time these days I can actually drive myself. Mom loves to say she's driving Miss Jodi! On days my mom is helping with the kiddos she'll say come right home when she knows I am feeling well that day. I can occasionally get lost in a store or two. Yes, I am turning her into a crafty one.....not that I am all that crafty either. But, it has been a bit of therapy. Something to block out the pain and being creative when your in the house a lot can be uplifting. I love doing projects with the kiddos so, I just decided to start my own. So, I do a lil of photography, painting, mixed media art etc. We have even set up a booth at a few local art/craft shows. It has been a great way to spread the word about Lyme and share the Lord Jesus with others. Our Lizzie loves it and this past time she went right up to folks and handed out information on our website and shared her heart with them. The Lord is so good!!! Stay posted we may even have an open house with the items this upcoming season or post them on the website. We shall see how the Lord leads.
CommentsMy dear friend, Becky gave me a devotion-Beside Still Waters. An updated version of C.H. Spurgeon. After delivering this book to me, my dear sister had a bit of a car wreck. PTL she and her precious lil ones were unharmed. So, this book has meant so much to me. I know that is blessed her during her trials and I cannot express how it has blessed me. This man knows suffering. The Lords leads me through His word for the exact verse that I need at that moment. The Lord alone knows the inner sorrows that we have. There are seas of suffering that the sufferer must navigate alone. No other sail is in sight. Scan the horizon and nothing is seen but wave after wave. Now is your hour for faith in the great Lord, who holds even lonely seas in the hollow of His hand (Is. 40:12). He knows your poor body, and He permits it to be frail. He permits your heart to tremble because He will glorify Himself in His tenderness to your weakness. He will make you strong. JEHOVAH ROPHI is His name: "The Lord who heal you". Give yourselft to Him, and youwill yet sing of His lovingkindness and tender mercies. I need NOTHING else to press on in this trial than my Lord and Savior. He alone can heal this incurable disease. He alone will get me through each minute every day for as long as I live. My heart aches for those suffering with this same disease who do not have this faith. Pray with me for these hurting souls who are lost and living without Christ!!
CommentsAmen Mom! I just want to be honest on what this trial is and can be. I want to show you all that it is absolutely NONE of me but, ALL of HIM!!! Only when I yield and surrender to His perfect will for me can I be strong and have hope to press on. This earth is not my final destination for I am only passing through. Because of what Christ did for me on the cross-I can face tomorrow! He has provided for me the most amazing mom, the greatest of friends and family and I am completely undeserving of my husband/best friend and our four precious gifts!!! My blessings are too many to count! And when I start giving thanks all of the hardships of this trial disappear. I love the complete chapter of Romans 8 esp., how it closes.....that absolutely nothing can seperate us from the love of God! Perspective, perspective, perspective!!!! I cannot say it enough. I am still up and walking not in a wheelchair like one of the Dr.s expected me to be. My children are safe in their beds tonight. This illness has not struck my children. The Lord has provided every need and has surrounded me with faithful servants and has held me up by His everlasting arms!!! I hate this disease but I love my Lord and I know this is only temporarily even if it is for all of my days on earth!! It is NOT for all eternity. I do believe that having Lyme has greatly blessed me. It has shown me the constant love of my husband in sickness and in health, it has brought me nearer to the Lord, I have been blessed by the ministering of the Holy Spirit and I long for the Lord's return above all things. He is my All in All. Some of you have said I do not know what to do or what to say. I am still me!! I love hugs-you will NOT hurt me. I love cards! I am up for company so, come by and sit with me.....share with me what's new in your life, let's pray together and read from His word. I enjoy a lot of laughter. I cannot promise that I will look wonderful or if my house will all be in order, or if I will even have goodies in the fridge. I may not have enough energy to get up from the couch on that day. But, your friendship will cause me to give thanks and your company would be so uplifting. I may even allow you to help me around the house. Hahaha!! Everyone who comes over wants to do something-there is always stuff to be done and I promise to be honest. When you pray for me tonight please praise Him for my salvation!! As a mom you understand what life can be like when your sick as you go about your day and if you think of me just pray that I will have strength and joy for each moment. It is by HIs grace alone!!!
CommentsFrom every stormy wind that blows From every swelling tide of woes There is a calm, a sure retreat Found beneath the mercy seat There is a place where Jesus sheds The oil of gladness on our heads A place than all besides more sweet It is the blood bought mercy seat I will come I will bow down Pour my burdens out at Your feet I will come I will bow down At Your mercy seat There is a scene where spirits blend Where friend holds fellowship with friend Though sundered far, by faith they meet Around one common mercy seat There on eagle’s wings we soar And sin and sense molest no more And heaven comes our souls to greet While glory crowns the mercy seat Ginger Millermon This song along with many others have blessed me greatly lately. I even had the privilege of visitng with one of my dearest friends last week and we just sat and listened to these lyrics together. Praise the Lord that we can boldly come to His throne!! It has been a little while since my last update. I am hoping to make up for that this week. It has been a long month. Come to find out that although I have made some progress my body has showed that it is still so weak from this disease. My past round of treatment wiped me out and when I returned the weather started to drastically change. My adrenals are stressed and my body just could not handle the die off of the spirochettes. Basically, I become so toxic and sick. Last week after relentless pain my Dr. prescribed a steroid (something I have never taken as it is an immune suppressor) and stopped all of my injections. For the first time, something actually brought my pain level way down and gave me energy. A break that I needed mentally. Living in chronic pain can be depressing. This disease is so isolating. I was feeling cut off from friends and discouraged that the Lord would leave me in this state. My greatest fear became that He would not take me home. The pain got so bad that I, and I am greatly ashamed to admit this but, actually thought is there a way out of this life that would not be sinful. Meaning could I take my own life and still be a Christian. How incredibly selfish and foolish. Last week I was rear ended while sitting at a stop light. After I realized what happened I looked up and cried out, Lord, why do you think I can handle this-I am not this strong. I was on my way to a birthday luncheon for my mom. When I finally arrived I walked up to the table only to find these dear ladies praying for me!! After the lunch I went and talked with my pastor-needing prayer. What a blessing!! Why do we doubt our Lord. I have had the privilege to watch Him work in one of my friends lives lately. Continually working out every detail to situations that we would think were impossible. He is amazing-why should we not expect amazing things. I have casted ALL of my cares upon Him-I have repented of my sinful thoughts and for doubting His plan for me and I have cried out for a complete healing (though most times I just desire to be able to function well for my family-I have come to accpet limitaions and want to be content). He has renewed me though His word and has reminded my that His yoke is easy and His burden is light. His cross will never ask for more than I can give for it is not my strength but His!! I praise the Lord for not forsaking me for not giving up on me. I do not see the whole picture but I once again have found comfort in knowing that the Lord does. Today is where I need to stay and keep my thoughts on what is true at this moment. Beyond today is in His hands and He will meet me in those moments which He has perfectly ordained for me. In recent days I was able to visit my dear sister in Omaha for her birthday and share in sweet fellowship with two others this weekend. Today I received a surprise package from my sorority sisters from college filled with cards, sweet-uplifting words and gifts!!! Wow, what timing! How fun to read through all of them. And above all to know that some of these sisters I will share eternity with!!! I thank you and love you all! Praising God for I know that every good and perfect gift comes from above. Yesterday, I started my injections again and slowly coming up the sterroid. I had a strong reaction on the way to church. Once we got there I ended up having to lay on the floor in the back of the worship center....BUT, was able to be nearer the brethren and listen to the teachings of the word. I was blessed and unnoticed!!! Hehehe Please pray as I continue with the daily therapies and add in more of the injections that the reactions would be tolerable and that my body would strengthen. Pray that I stay strong in this fight and never, never give up!!! I look back on what I thought was living I'm amazed at the price I choose to pay And to think I ignored what really mattered Cause I thought the sacrifice would be too great But when I finally reached the point of giving in I found the cross was calling even then And even though it took dying to survive I've never felt so much alive. CHORUS: For I am crucified with Christ and yet I live Not I but Christ that lives within me His Cross will never ask for more than I can give For its not my strength but His There's no greater sacrifice For I am crucified with Christ and yet I live VERSE 2: As I hear the Savior call for daily dying I will bow beneath the weight of Calvary Let my hands surrender to His piercing purpose That holds be to the cross but sets me free I will glory in the power of the cross The things I thought were gain I count as loss And with His suffering I identify And by His resurrection power I am alive (CHORUS) BRIDGE: And I will offer all I have So that His cross is not in vain For I found to live is Christ And to die is truly gain (CHORUS) Send “Crucified With Christ” Ringtone to Your Cell Phillips Craig And Dean Lyrics > Crucified With Christ Ringtone, Video Related for Phillips Craig And Dean : Buy Phillips Craig And Dean Sheet Music Buy Phillips Craig And Dean CDs Phillips Craig And Dea
CommentsThank you all for the prayers. This has been a long stretch and for some reason this past Friday things got worse. When it doesn't let up for weeks it becomes an emotional battle. Trying not to be discouraged or even fearful. I have been doing all I know to do to bring relief from the pain. The Lord is faithful and will not fail us. I do not know what the plan is BUT, I know for certain that He has it under control and cares for me and will work it all out for good. I only hope I can glorify Him through it all. May I have peace in the valley; surrending it ALL to Him!
CommentsHave to share that it continues to be a rough road. Still struggling with being quite toxic. So, feeling sick and symptoms are going strong. Doing so many therapies to get through this rough patch and praying they will bring relief. Have to say I am feeling worn out emotionally; a bit weary. I was making great strides and now it is a if I am in a holding pattern right now. Striving to stay focus on what is true and being in the moment. I know His grace can and will see me through according to His plan. Please pray that I will not give in to my flesh and not be focused on how I feel. My heart was heavy for my family this weekend. I know this tends to fall upon Michael. He continues to love me unconditionally; it is so clear who he clings to for strength. I do not think there are many in this world quite like him. Our kiddos continue to press on with smiles. When I shared we are not a normal family; Meg said baloney! I adore them and pray that I can show them courage and full reliance on the Lord. Thank you for all of your kind words when I see you. I know that I don't always look sick but, please realize what I go through in order to be in your presence. Sometimes it is resting all day, or literally getting ready in the church parking lot, I spend much of my days going to appts. so I can stay functioning and continue to give myself shots/taking salt baths and so on just to keep myself able to get through the day. Yes, I am better but, that means that I am not in bed or on the couch all day every day. I do not see the light at the end of the tunnel and I don't need to because the best thing for me to remember is that there is hope in tomorrow because of my Lord and Savior. I continue to wake up daily and strive to focus on the priorities of the day. Planning ahead can be tough and not always realistic for me. I pray that my perspective remains heavenly. Thank you for giving me a voice throughout this trial. Blessing to you all!!
CommentsWow, it has been too long since I have updated. It has been far rougher that I thought it would be. I knew it was a lot for my body to go through in a short time but, I was so much stronger this time and thought I wouldn't crash when I returned home. It was a slow slide but my body was wiped out. I slept A LOT the whole week. Thankfully, our folks stayed the week and I had a security net. It was good to be able to just give in and rest as I needed to. I was so hoping it would improve by the next week but it actully got worse. I little unsettling when I get to feeling that bad again. I know there are more spirochettes in my body but you don't know how much or where. But, as long as their present they are creating havoc in my body as I strive to get well. My red cells had lil dents-looking like flowers-as they have been trying their best to invade them. Nasty lil things!! Basically, all of my symptoms returned even the ones that had been gone since May. Had a day that I just cried throughout the whole day. It is so tough returning to those tasking days. Talked with my Dr. on Friday and he felt that I was quite toxic. The word toxic tells you exactly how I have been feeling. When you do the treatment it stirs things up and kills the spirochettes which let off toxins. My body does not easily rid of the toxins so they sit and make me quite ill. My lymph nodes swell pretty bad esp., in my legs. It gets quite painful. Trying to do all I can to rid of these and strengthen my body once again. I have a full time job in striving to get well. Going to sauna appts., massage appts, chiro appts., taking my meds/shots etc. etc. It may sound like luxury appts. but it isn't when you have to do it for medical reasons and insurance will not pay for any of it. It gets quite expensive and my hubby never complains. Sometimes I have no idea how we have the funds needed for all of this. I am amazed in how the Lord provides for us. We are doing our homework in HOPES to purchase a far infrared sauna to have at home. It is something I need to daily if I can and that is just not feasible without owning on. The great thing would be that Michael could use it too. I am not sure what all I have shared with you but my hubby tested positive for lyme and will certainly need to go with me to be tested/treated at Sierra. We are doing some therapies at home. He has symptoms BUT they come and go and are not keeping him from any daily activities. The BIG concern is that he can give it back to me. At first, I panicked with this thought but I have completely turning it over to the Lord. We do what we can and we trust in our sovereign Lord. I pray my body is stronger to not be reinfected. There are so many emotions that go along with this disease. I was told getting it rid of is one trial not being reinfecting is another. Praise the Lord that I am in the care of the creator of the world and my times are in His hands!!! We are giving thanks for the delicious and thoughtful meals are neighbors provided all week and for my loving and supportive family. Please pray as we continue to press on and that I will have renewed strength in the days ahead. Pray the the insurance co. will begin to respond positively to our claims and PAY towards them. When you think of us pray for those sufferring from this disease. Conventional treatment is ineffective and shows lil hope for research and changes with the current healthcare trends. My entire family believes I was slowing dying and if it were not for the Lord's will with this current treatment I would still be on that path. My medicine was late arriving here for the first time and it was painfully obvious that my body is being sustained by this treatment and it will only fail without it. This treatment is not even possible for so many because of the cost and it comes as a great sacrifice to so many others. Many can stop treatment after 6 months but for so many of us that are far worse the end in sight is not there. So, it's one day at a time. Can you imagine paying for your health insurance monthly only not to be able to use it for the treatment that could very well be saving your life. My medicine is over 500 a month and that doesn't include any needed therapies. I share this so you will pray and if you have someone dear to you in this current situation ask how you can help. I know every good and perfect gift comes from the Lord!!! I have much to share but time for bed. I will post again soon!! Lots of hugs from Kansas, Jodi
CommentsI am home!! Yeah!! All went well-just tired. So good to be back with my family. Pray for my mom-she came down with a cold and is not feeling well. I will be staying in touch. Always giving thanks for each of you!! Love in Christ, Jodi
CommentsYEAH! This time tomorrow I will be back in the arms of my handsome husband and looking into my beautiful brown eye kiddos!! Praising God we have wrapped up a great week of treatment. I am thankful how well everything went and for the people I was blessed to meet. Looks like I will not have to go back until January. AND Mikey will be coming too!! Doing the homecare is a piece of cake after a full week like this. I am grateful for sierra and for all the wonderful folks who work there. They work so hard and truly care about the progress of each patient. Everyone is understanding of this trial. How fabulous to have the entire staff from the Drs to the office manager be informed on auto-immune diseases and the treatments they offerred. Time to rest for awhile and then pack up!! Lots of Love, Jodi
CommentsHello dear ones. Iam so grateful for each of you. I have written this update once already today but started feeling ill and then somehow lost what I had done. Ugh! Don't ya just hate that. Okay, so I will back up a lil. Last night was HORRIBLE. I was hangin over our lovely toilet for far too long. But then was so dizzy that I could not move and camped out on the floor. Mom Linda made me lay on a towel-she hated that I was on the hotel floor but, I could careless. She sent Dad out for ginger ale and covered me all up and sat on the floor with me for nearly an hour. I am SO greatly blessed. I truly giddy in joy because of the Lord. It was rough well into the night. I have to say, I requested to go up a higher dose in the meds for that night. I know, I know I am just plain dumb! But, I wanted last night to be hard-I felt strong enough physically to handle it plus, it would give me more days to get stronger before heading home. Today, I woke up quite tired but so encouraged by my blood results. My bloodwork looked great-a few things off but we will address those. And then I did my dark field. Mom Linda and Dad came in with me and were so happy they did. They are such great supporters of this treatment and have been pleased and impressed with the care/treatment here. PTL!! Well, my blood looked good. My white count was a lil higher than last time. The microscope they use can magnify sections of your blood by 50/100xs. So, on the screen they want only 5 white blood cells. I left from treatment with only 2 but, I am back up to 12. Let's me know there is infection and battling going on in my body. On the other hand, my red cells were prefectly round and beautiful. Huge improvement. So neat to compare the before and after. I had ZERO spores-which are the babies that fill up the red cells and then leave that cell as a spirochete only to go and invade others. Not a good thing!!! Nothing creepier than to see what is alive and moving inside of you!!! I had a couple of lil spirochetes-you can see where a few red cells had some lil dents in them where they are trying to get into but, my immune system is back to functioning and keeping them at bay. So imporant for me to stay on this path. With these results it is so encouraging to continue to endure and press on. While I am here we are getting some things balanced out-alot easier than over the phone. It has been a blessing to be here. The treatment and whole process is so different with just feeling even a lil better. I was thrilled when my Dr.s spouse stopped in awww when she saw me. She couldn't believe the change and shared with the patients a bit of my battle. I will wrap it up tomorrow and it looks like a full day starting at 8:30 and then I am home as planned on saturday. Yeah!!! Michael's folks are staying another week with us-hoping to have some fun-see all the kiddos activities and it always wonderful to have extra help. I am so grateful for the relationship we have esp., the one we share in Christ! Mom is doing great holding down the fort at home. Can't wait to hug here when I get home!! Wanted to share a few things. When you go through life changing events it can get people thinking and talking. Especially, in the environment we are in at the clinic. Someone mentioned what will you do when the earthquake hits in you life? James tells us that there WILL be trials in our lives. If you are reading this and you cannot answer how you would be able to stand up under a trial-may you know that the truth lies within the gospel of Christ. That we are all sinners and deserving of death-that there is nothing we can do on our own to live in the presence of God for all eternity-that God sent His one and only son to die for our sins and Christ willingly did so, so that we can have eternal life. May you trust in Him and know the joy of living for Christ. I talked with a new friend and shared that it is not a religion but a personal relationship with the Savior of the world. It is not my place to change your heart-only the Holy Spirit can do that. As a beliver may we live our life as a shining light to others-that our actions can turn people away from His truth-how heartbreaking to think that we have or could do this. Don't take my word for it read His truth in the Bible. I was saddened to heat that someone who has placed their faith in another god cannot see any difference in their lives from 20 years ago. And they shared they are faithful living out their beliefs of their chosen religion. Only Christianity can change a person-by His word, mercy, power and grace can our lives be transformed daily. By being in His word and livng for Him daily can experience any changes, in our thoughts, actions, weakenesses etc. Please know I am only so passionate to share this with you because I have seen the sadness, hopelessness, fear in the eyes of so many others and it doesn't have to be that way. I pray that I will be a faithful prayer warrior for them. It is only by grace alone that I can share this with each of you. For those of us who do believe may we never take it for granted. Well, I am off to bed and I thankful to say that I am still here living one day at a time and hopefully learning all the God has planned for me to learn. Blessings and hugs, Jodi
CommentsWell, after that push last night I ended up getting quite sick. I won't go into details but it seems that Mom Linda and I both got a touch of food poisioning. Ugh! Not fun added in with a push. Thankful to wake up feeling good and had a great day. Treatment all went well. Enjoyed talking with another believer and even felt well enough to take a walk in this beautiful sunny weather. Praise the Lord!! Waiting for my push and then heading back to the hotel for the night. This week is going by so quickly. For me it has been so much easier this time. It helps to know what to expect plus, I am not as sick as I was when I was first here. It is nice to have all the workers comment on how much I have improved. I guess I have surprised them all!! But, for my kiddos esp., two of them it has been quite tough. They are still sensitive to me being gone for 5 weeks last time. There were some tears today-only 3 more nights. I pray that the Lord will comfort their aching hearts. I was so blessed to have time with each of them one on one before I left. Ryan even took me out on a Mom and son date. He treated me to Panera and watches out for me when I drive...too funny to hear his comments. I adore our precious children and so grateful to have strength and hope from the Lord to keep battling this disease. Ryan you are so right son-the Lord is good!! I have had some good talks with others here on this trip. All new faces and it is so enjoying meeting others from all over who are experiencing a similar trial. I am sure some did not know what hit them when I came skipping in-sure hope it is encouraging to those who have just begun treatment. Plus, I do try to be good but, sometimes you just can stay quiet. Guess that is not my specialty. Anyway, when a gentlemen said that Mormons are the greatest/strongest Christians I had to speak up. In fact, I said they are not Christians at all and shared a couple of examples of how they differ. It didn't go over quite well with everyone. This poor folks hooked up to IV's and here I am raising their blood pressure. Well, the neat thing is that another person asked for me e-mail and sent me a note saying a totally agree with you. Plus, another person said they went back and looked it up and were thankful for the info. and agreed. Anyway, interesting. Gotta go time for my push!
CommentsHi all. Well the vacation is over. hehe. It was another great day then came the push and the lovely reactions. Certainly not the worst one ever and I am gettin through just fine. Just not much fun. Still in quite a bit of pain and slightly fevered but it is worth it. Nice to know that this is not in vain. Praise God! Thank you ALL for your loving words, care and support. We are so incredibly blessed. My in-laws are hangin in there with me and being sweeties!! By Grace Alone, Jodi
CommentsHi! Our first day went great. Met with my Dr. and he is very pleased with my progress. God is so good! This is a long road to recovery but, every bit of it is worth it. Esp., becasue the Lord walks with me through it all. I know that I will need to continue with the care at home and stick with the changes I have had to make. My progress is so uplifting. I am grateful for every day even with limitations. IV went good/gave myself the 2 needed shots, had bloodwork and the push went fine. Reaction was minimal. Napped tonight. Good seeing everyone's smiling faces at Sierra. They work so hard hoping to help those sufferring. My folks were so pleased with it all as well and enjoyed meeting with my Dr. We had lunch at PF Chang's-delicious lettuce wraps. Beautiful blue skies and sunny-able to sit outside read/talk to my kiddos and enjoy the sunshine!! Fam at home had a good day. This trip will go so fast for us all. So thankful for His provisions leading me here and providing all of our blessings in this trial. There is hope, joy and peace in trials if you trust in Him!! Tomorrow is suppose to be a repeat of today. Thank you for the prayers. Please continue to pray and praise the Lord with us from Reno!!!
CommentsHello All, Arrived safely. All went well. Nice and cozy hotel that we are thankful for. Has been fun and funny travelling with my in-laws. They are great and quite cute!! It is very weird being here AGAIN. My family told me but, this time your skin is not gray and your eyes are bright and clear. Hehe! so glad that is true. Last time I couldn't even read a page from a book-hard to focus. This time I nearly finished my book today. Good thing I brought a few. Rhonda and Renee-I got some funny and light reads! Yeah!! Missing my fam like crazy. My heart aches for them. so glad I do not have to work and be pulled away from them. Makes me so thankful that we are together daily and I don't have to miss all their important moments. I am here for them!!! There will be much going on in their lives this week for Michael and Nana to tend to but, I know they will do great. Sure is nice to have a camcorder to capture what I will miss. I am compartmentalizing everything-focusing on the Lord and what is right at hand. So. one step at a time. Praise God for all of His provisions!! Love to you all. Thanks for sticking around to see how the Lord is working all things out for good in my life and in my families!!! Love in Christ, Jodi
CommentsHi Friends and Family, I have had a few rough days this week. Lots of needed rest. Our folks arrived yesterday from Georgia. Always good having them here. Tomorrow we leave for Nevada. Hard to believe this day is here again. I certianly know it is the right thing. The improvements in my health and our continual time in prayer have been confirmation. There is peace being in God's will. I know it will not be easy being away from my family again or going through great physial discomfort. I am just taking it moment by moment. There is grace for our present needs. It has been great having special time with the kiddos. I know it is hard on them esp., Mia. She is to young to understand. They have see me getting better so that helps plus, Elizabeth wants to help give me my shots now. Can't wait to see what the Lord has planned for each of them. The Lord is working this all out for good in our lives. Please pray for their hearts to be filled with the Lord's strength, peace and comfort. May I be a light to all other near me at the center. Pray for Christ to reign in the hearts of the unsaved. Pray for safety for all of us while we are away from one another. And that my treatment will go smoothly, that I will be tough and have great success from the treatment. I am really not scared-sometimes it is overwhelming and unsettling if I let my thoughts go down that road. Best just to not even go there. Mom will be moving in for the week-I know they will all pull together and do well. May the Lord give my Mom needed strength and that the kiddos will be fabulous! I also pray that Gram and Papp will have the strength that they need for our trip to Sierra. I know at times it will be tough and I very new experience. May we all cling to the Lord!! I am so thankful to say that the Lord has provided the means to have another week of treatment. PTL!! I will update as I can this week. Blessings to you all!!
CommentsWOW!!!! Ginger thank you for such an uplifting message. I have no business being up this late but, wasn't able to sleep. I thought I would check to see if I had any comments in my guestbook. I am never certain if anyone is still reading my updates. Life has been busy and I am sorry for my delay in following up. But, I am praising God as the tears are flowing reading your sweet words. Thank you for taking the time and for sharing your heart. There are two reasons I update-one is to take every opportunity to glorify the Lord by sharing His works in my life through this trial and the other is to encourage people just like you. For those struggling with Lyme or other chronic diseases and are not sure what treatment to seek but above all, for them to know that there can be joy, strength and peace through this because of Jesus Christ. I am so grateful that I could be encouraging to you. Please e-mail me directly at Dunbarm@sbcglobal.net. I hope you will share with the folks at Sierra why you are coming back-I know it is encouraging to them to hear that our testimonies are making a difference. I am praying for Chris right now. Please share with me on how he his doing. I will always keep those who were right there with me experiencing the same thing in my heart. On with a brief update. We had a fabulous time in Florida. We were at Grayton Beach and it was so beautiful. My favorite place to be is next to the ocean standing on that sugar white sand. I cried when I first saw that emerald water. Rejoicing to be there with my precious family esp., after all we had been through this year. Last year a friend had to come and help me pack in order to make it on our family trip. This year I was taking daily bike rides with my kiddos, walking on the beach and playing in the sand. I felt wonderful!!! My tenderhearted daughter Elizabeth decided to withdrawal money out of her savings account to purchase a very special birthday gift for me. She obviously knows how much I enjoy our bike rides at the beach and love the bikes we ride-they are old fashion with baskets. So, on my birthday I received a blue bike with a basket!!! A gift I will always treasure. The moment we returned from vacation the kids jumped into school. Mia is in K, Elizabeth 2nd gr, Ryan 5th gr and Meagan is now in 7th grade and loving it. I am so proud of them!! Although the first week back was rough with some pain but mostly fatigue we still had a great start. I have been up each morning with the kiddos. This week I have felt wonderful!!! LOTS of energy and full days! It has been amazing. I have been able to really be active and take care of the dailies on my own. What can seem like little things to others is huge for me. For ex, managing the household, cleaning, shopping, making lunches, putting gas in my car, picking up one of the kiddos glasses and anothers piano materials, reading and snuggling nightly with my children. I am so thankful and feel incredibly blessed. I am loving that it is not all on Michael's shoulders. I continue to take it day by day and live in the moment, thankful for yesterday and hopeful for the future. I have taken a lil break from one of my shots-"The Hornet". But, will begin again this week. I cont. to keep on all the other therapies and treatment. It is a part of my routine now. Typically, getting much needed rest but tonight I am a lil charged. We have dear friends in town and it has been such a wonderful visit-just like old times-except no more babies. Right now there are 10 amazing kiddos sleeping soundly in our house. What a blessing to see them all, hear their laughter and not have one dispute between any of them. Tomorrow night we are taking the older girls to the American Idol concert. Great moments and memories!!! I did follow up with another dentist in Horton, KS. At of all places-too funny! It was a good visit and I was very encouraged. The Dr. has had great training it is quite knowledgeable in dealing with situations similar to mine. His goal is to keep it as lil invasive as possible. We started treatment and I will follow up in Oct. God is so faithful-may we always seek Him first and then follow in obedience. Well, in one week I will be on a plane to Nevada. I am looking forward to returning to Sierra. Bringing chocolate with me for everyone there!!:) I am working on having things in order at home and preparing myself physically and spiritually. Another opportunity to surrender and full trust in Christ! Must get to sleep but, I will check back in this week. More to share!!! Love to all!
CommentsHi again. As I write this it is nearly my birthday-can't believe I am putting this in print-I will be 39! How did I get here so fast. It seems like once you hit 30 time picks up double time. I can't believe I have loved my hubby since I was just 19! So thankful to celebrate this day with my precious family. My treasures! This year has been full of so many blessings. Something I read said, shallow trials only bring shallow graces. Well, we have been shown the Lord's faithfullness and grace in abundance throughout this year. Nothing shallow about it. Today, I did some research on all of this dentist stuff. Found some great sites and good info. Has anyone heard of "cavitations". Well, I guess they are cavities in your jaw bone. Basically, I hole that becomes a cesspool of toxins. YUK! They can be caused by root canals and the from removal of teeth. I have come to better understand root canals and why they are potentially harmful. Now I am researching the removal of cavitaions. A bit overwhelming. There is another dentist in Horton, KS that I am hoping to visit later this month. His next opening for a consulation is in Oct. but, they are working on fitting me in this month. Very accommodating office. It will be a 2hr. drive at least but, we feel def. worth it. Basically, root canals, cavitations are normally not a big deal for patients with strong immune systems. But, it is quite the opposite when you have a supressed immune system. Pray for us as we seek the Lord's guidance in this area. We are just days away from heading to Florida. We will be in a house with my folks just off the beach in Seaside. Just a short drive from Destin. Cannot wait to stand next to the ocean and listen to the waves. The sand is like flour and the water is so clear. It will be wonderful being away with the family. Tomorrow, I talk to my Dr. It will be good to get his advice and discuss my upcoming trip. Thank you all for your constand support and encouragement. I will keep you posted!
CommentsHello again. I have some additional news to share. There was a bill passed this summer that recognizes Lyme disease as a chronic disease. Up until now, doctors who specialized in treating this disease as a chronic disease were at risk of losing their license; unfortunately, many did. They were accused of going against standard medical protocol because they were prescribing antibiotics for more than 4 weeks either orally, intravenously or intramuscular. This brings up the concern of the government being involved in our medical care. I am sure most of you are quite aware of the current debates on the possibility of socialized medical care. How devastating to think the government could decide not only the appropriate course of treatment, but whether we would be provided with any treatment at all. I'm not even gonna go there right now. Back to the bill....hopefully, the doctors who do specialize in the study and treatment of Lyme will advertise this in order for more sufferers to find these knowledgably doctors. Then there's the debate if long term antibiotics even work. The hope is that more awareness and knowledge will come to this disease so a diagnosis can be made in the early stages. Moving on, Tuesday I went to see a dentist in Clinton, Missouri--just a lil' drive under 2 hours down 71. And I had a good reason. During my care in Nevada, my doctor encouraged me to seek out a holistic dentist. What is that exactly? Michael and I were very skeptical of this. The information he provided stated that having a root canal is one of the worst things you could do for your health. Well, I have had four! One for every baby I had! This dentist is a part of IAOMT-International Academy of Oral Medicine and Toxicology. These dentists use biocompatible and mercury-free materials. They look at the teeth and body as one. Basically, a holistic approach. Well, there are not many in our area. We chose one Michael knew from many years ago when he sold dental material/equipment. Very nice guy and has been practicing dentistry since the 70's. He stopped performing root canals 7 years ago. This approach to dentistry has been around since 1920's. Anyway, he met with us for a consultation. Basically, I need to follow up with an oral surgeon in our area. He recommended someone he has worked with before. Plus, he is researching two other doctors in our area to do whatever work I choose. We're continuing to research this and pray about what to do. One site we're looking at is MamaGums.com, and the Root Canal Cover Up book. I'm learning why root canals can be harmful. It's certainly a school of thought that some may choose to debate. When you're healthy you have the privilege of not being concerned with such things. BUT, if you're not, you'll find yourself researching and considering things you may have never otherwise imagined. I give thanks that I am in God's will and have an amazing, intelligent and caring hubby who watches out for me. Oh yeah, the dentist took a few tissue cultures and put it under a microscope. I am beginning to detest this technology. Michael and I were grossed out to see these aerobic organisms alive and well. And what did we find but, SPIROCHETES (the nasty little bacteria that cause Lyme disease). The look on Michael's face was priceless. I nearly fell off my chair. I was hoping they would not be in my tissue or in my mouth-yuck! No wonder my jaw aches!! Thankfully, we now know they're there and can do something about it. I have this little poker thing that I put in between my teeth and squeeze a solution in to kill those horrible things. I don't want them in my blood--that's when they become much more damaging and difficult to kill. When I return to Sierra in September, I will find out if they have indeed returned to my circulatory system. As long as they're in the tissue, they will eventually find their way there. The battle continues!!! I'm learning contentment with this trial, knowing we're on the right road for healing. Above all, I'm not worried because I know He is in control. My God is The God who reigns on His throne. He is immovable, unshakeable, unstoppable!!
CommentsHi family and friends. Cannot believe I am writing this in August-summer has flown by. I am that girl who never wants summer to end. I love flip flops, days poolside with my kiddos, evening walks with my girls, hot sun and yes humidity!! It's great being on our schedule and getting to do things you just don't have time for during the school year. I am praising God that I have felt well again to enjoy these days. June was fabulous-lots of great days. July has had some challenges but, nothing much more that a day or two at a time. I am not responding as well to the treatment-thinking that it is time for a recheck on my med levels. Also, need to be sure the lyme hasn't surfaced again. I am so thankful to share that I am returning to Sierra Sept. 6th. for a week. Yes, the plan is just a week! My hubby's folks have agreed to go with me. They get to see lovely Tahoe and I get the support necessary to do another week of treatment. We are incredibly blessed to have such an amazing family willing to serve and love one another in His name! My dear mom is staying in Kansas this time to care for the kiddos. Michael will be travelling for work a few of the days I will be gone. I so wished he could of gone on this trip but it will need to wait. I am actually excited to go out again. Crazy it may seem but, I know it's working and it's what I need. I just don't let myself think about how tough it will be to be away again or to go through more pushes etc. Hey, if I could do 5 weeks, a week will be a piece of cake! The Lord has continued to provide all of our needs. He has placed it on a few dear hearts this summer that came at a time that we were contemplating cont. with private school. Thankfully, the kids will be at Berean again! I cont. to do the homecare. Some of it I have struggled with-seems my body is quite sensitive. Unable to handle many changes with the treatment. I can now do all of my shots myself. Yeah!! I do struggle mentally with the "hornet". I just hurts so much and I have grown quite tired of it. Everytime I do it-I say that's it, no more. There is grace in the moment as it is needed!! I have remained consistent with my eating habits-no red meat-I get sick everytime I eat it. Plus, limiting sugar and no fast food. I also do the other therapies my Dr. rec. The infra-red sauna has been great. I wonder if I will truly ever be free from physical limitations and the effects of Lyme but, I cherish every great day and stay only in the moment. Looking back or ahead is useless. Making the most of every moment-living for the Lord is what counts. How easily we forget. I am grateful for the joy and the strength that I have in Him! Need to go for now-but will write more this week. Bless you all! Keep us in your prayers-we cont. to give thanks for each and every one of you. Hugs, Jodi
CommentsJust wanted to say Hi! We are having a lovely time at Callaway Gardens. Lots of outdoor fun at the lake! The weather is hot and beautiful. Today, Linda and I enjoyed time at the spa-we had massages and hung out at the pool reading. What more could a girl want!?! We have some amazing husbands as they had a blasts with the kiddos. We are truly surrounded by nature-love the GA pines. Not loving the insects but not afraid of them, thankfully! I wanted to share that I talked with my Dr. tonight and he is encouraging me to come out soon for a week to Nevada. I do want to go back and def. want my hubby to go with me. BUT, I didn't want to do it over summer. Plus, there is the expense. So, we are looking into it and praying about this decision. Please pray with us as we seek the Lord's guidance.
CommentsHi Family and Friends from Georgia! We are visiting our family and having a wonderful time. Prepping for the trip went smoothly....I have learned much about not stressing myself out and packing. Ubfortunatley, when everyone was fast asleep, I was up to late the night before we left. Our flight went uneventful into Atlanta and then we headed to Perry. We have had a great time with our family. Kiddos have enjoyed playing games, tennis, basketball, golfing and swimming. Lots of outside fun! We went to a local pecan/peach farm...YUM! Tomorrow we are going to Callaway Gardens. Thankfully, I am feeling well and sticking to my treatment. I have eaten some foods I really should avoid but trying not to overdue it. We had zero problems travelling with my meds and Sierra shipped some things I needed directly to Gram and Pap's house. BTW, they are fabulous getting what I need to me in a timely manner. I really am doing good. I was able to go to Sunday school and church last week and enjoyed church service today. I am amazed what use to be the simple things are now huge accomplishments. This past week I was able to get the house in order (along with my helpers), get to scheduled appts. and take Meg to swim team daily. Not to mention sharing sister time with Rhonda and a day at the farmstead with my sis, Angie!! My days were really full and I didn't crash. I certainly need to listen to my body and take all things in stride. My lists making days have greatly changed. Now it is based on necessities and priorities. I cannot and will not let the small stuff bother me. I also realize what doesn't get done today will be there tomorrow. I am sticking to a diet-eating by my blood type. I am finding that it is a big help for peaking my immune system. I still have pain daily but is is manageable and quite tolerable. Although, I desire to one day be pain free. I feel physically stronger and am sleeping great. Fatigue is not controlling my days anymore. God is so gracious! My core treatment is going quite well. There are a few things I have had to pull back on for a little while like my food allergy shots and weaning off my 2 medications. Thankfully, I have not had any further symptoms of the tachycardia. I have to remind myself that the effects of this disease didn't just occur overnight. There are many levels of healing that need to take place. We are definitely seeing improvements but I know I still have to stick with this treatment and lifestlye change. This disease effects us all differently-I believe we are doing a good job addressing what my body needs for healing. I think that Sierra does a good job zeroing on the issues and not taking you down a rabbit path or pushing things on you. I continue to stay in contact with my Dr. there-sure wish I lived closer. I will most likely return this summer. Since I have been home I have began other therapies as well that was encouraged by my Dr. Colonics has been a big help-I just love Caroline and the care and encouragement that she gives. I also began lymphatic massage. When you have been sick for a long time your lymp system can stop draining properly. I was getting swelling and pain. The massage helps get the lymph nodes to open up and drain. I am so grateful to have found wonderful people near me who specialize in these therapies. I also began infra red sauna treatment. This helps detox the body on a cellular level and peak the immune system. All of these things have been a great help but can also be expensive and timely. It can all be so overwhelming. We now know what to do for this disease BUT it is taking alot to be able to do it. Of course, it is a great investment and necessary. The Lord has exceedingly, abundantly provided all that we have needed. Moments do creep up and I think I am gonna cry or get angry. Wondering how long can we afford to do this? What if I cannot get the care I need-how wrong it is for not being able to get treatment because you cannot afford it? Or what if others in my family need to do this? We are still waiting for any word from our insurance co. I do believe it is completely 100% wrong how the majority of healthcare prof./insurance co.s/pharm. co.s/researchers and even the CDC are dealing with this disease or simply ignoring Lyme. It is complex, but how long can they turn a blind eye to the realities of this disease. With that ALL said, here is how I deal with it daily. First of all, I believe that nothing comes into my life that hasn't first past through the hands of my heavenly father. And He is ALWAYS good, loving and faithful. He is all knowing so sees a bigger picture of all of this then I do. With that I know He has a perfect plan for me for my good and my family. I have to daily accept the realities of what this disease has brought into my life and surrender to the Lord. If I live one day at a time trusting in Him, I experience His strength and peace. It cannot come from anything else. He fully knows our financial situaion...that we desire to keep our children enrolled at a christian school...what my body needs and the cost of all the therapies...if any of my family members will suffer with this and what will be best for them. My wonderful husband reminds me that He has brought this far and will continue to see us all the way through. You cannot doubt if you want joy. Love to you all. Thank you for checking in. I cannot tell what joy I had today meeting so many wonderful folks that have been faithfully praying for us. If you visit the site, please let me know who you are and if I can encouraging to you in any way or help provide you with information on Lyme. Together let's continue to help educate others. May you look for the blessings in your life and give thanks for all that the day brings! In Christ's Love, Jodi
CommentsJust a quick Hi!! I am doing good. Feeling better being off my food allergy shots. My body is still quite sensitive...I am just on too much stuff right now and I think my body is over tasked. Still in the building process. The core of my treatment is going GREAT. My body seems to be thriving from that. I always feel a boots after those shots. It is the other side of the treatment that I am not handling as well. So we have decided along with our Dr. to take a break from that for a little while. It is tough being out of state from my Dr. but, they are doing a great job guiding me along and staying in touch. It is obvious they are used to this with many other patients. Michael and I still believe we are on the best road for my healing. The good days have out weighed the bad. I haven't had one whole day where I have been layed up like I was before going to Sierra. Eventually, I will need to fly out for a few days but nothing to soon. It seems after a appt. today that I have found a Dr. who can help me and not interfere with my treatment. The Lord continues to direct us. The kids are officially out of school....yeah!! I LOVE summer. It could be summer all year long for me. We are in our flip flops and went to our neighborhood pool today. It was gorgeous out. Loving these hot days. Bless you all!
CommentsWell, tonight was a shocker. After a great evening at church we ended up in the ER. I have had uncomforable fluttering in my chest the last few days. It kicked in again tonight and Michael was concerned. We called my Dr. in Nevada and felt that we should go to the ER to have it checked out. My EKG did show that I was having PVC. Basically, heart contractions. We think it was an reaction to my food allergy shots I have just started. They monitored me for a while and then did bloodwork, chest x-ray and gave me fluids. My potassium was low so they gave me something for that as well. When my EKG normalized that let me go. I am stopping my shots and will follow up with the Dr. Please continue to pray for the protection of my heart. Heart disease runs rampant in my family so it is best not to ignore the symptoms. I was however surprised that Michael and dear friend and nurse Debbie and my Dr. all wanted me to go the ER. I thought stopping the meds and waiting would be good enough. I have to say not my favorite place to go....kinda tired of the whole setting, tests etc. It takes a brick to hit me to get me to want to go and check things out. Good thing I have these amazing loved ones in my life. We will continue to seek the Lord for wisdom and trust in Him. How wonderful is it to trust in Jesus...I gotta say I love the Lord and how He works in my life.
CommentsWell, I survived the zoo today even without a rascal scooter. If you have ever been to the Kansas City Zoo you know that it is a lot of walking with the occasional animal viewing. I resisted going to Africa. Instead Mia and I rode the carousel 3 times. Nana went along and is was a great day! Praise the Lord for a beautiful day and for all the wonderful teachers leading the way. Tommorrow is classes in the morning and kickball in the afternoon. Wed. is classes in the am and kite flying in the afternoon. Thursday is Omega day...field day until noon. Summer vacation is in the air! Please pray that I can find a Dr. locally who can help me out with a few things....there are some needs that have come up and I can't just hop a plane to Reno. No biggie but need to have someone understand some of this treatment and not try to change it or add to it. We are desiring someone here in town but if not I can drive to Richmond again. I know the Lord will guide us with this decision. Had to do 2 shots while at the zoo and no problem. Gotta say I am gettin the hang of this. Off to prepare dinner and REST!! Love to all!
CommentsHere I am again. Guess I will do shorter updates more frequently. I was so sad not to be able to join my family at church today. Not knowing what my limits are, I may have over did it yesterday. For over a year I haven't had to worry about limits because I always felt weak, fatigued and sick. Now that I am having some better days I want to enjoy what is going on in our lives. My kiddos had four soccer games yesterday...2 normally but we had make up games from the rain. I made it to 3 of them then went to an open house for graduation. For me the day ended up being quite full and active. I slept good last night all the way to the lunch hour. A few months ago I would have done that only to wake up and not feel any better. But, now it is more of needed rest for healing and then I can enjoy the rest of the day. I have no idea what each day will bring or how I will be feeling so it is hard to plan ahead. This trial has taught me so much about being flexible. Praise the Lord that He has given me some amazing friends who are flexible too and so understanding and considerate. They are gems in my life!!! I asked the nurse at Sierra this week how I could protect myslef when outdoors from bug bites. I seem to get many! He said where long sleeve shirts, pants, socks and tennis shoes. That is not an okay thing with me....I like flip flops and the sun! Kansas gets quite hot this time of year. Bug repellent is okay too. I am just trying to take precaution but I'm not fearful of it and surely will not let rob my job of loving the outdoors. Tomorrow is our Zoo field trip. I am so hoping to go with the kiddos and Nana. There is NO way I could physically walk that zoo and not crash. So, I am either gonna walk a little and sit a lot more or rent me a scooter. Yes, we have come to that but it is only for a short time. I wonder how my kiddos would respond to that. Mom and I have hysterical memories of her days in a scooter after her heart surgery. Well, I am off to enjoy the backyard with my family. Today, has been my biggest shot day yet...I have 7 in all to do. Five down and 2 to go. Michael has been fabulous in assisting. So glad the love of my life is home. Bless you all and may enjoy sweet fellowship with our Lord and Saviour Jesus Christ today and always.
CommentsHi! Hoping to have updated sooner. Thanks for keeping in touch with us and being so concerned about my progress. Last Friday I had quite the negative reaction to one of my shots and Saturday followed with another one. Up until yesterday I still felt the reaction. It knocked my system off and reminded me of the road I face daily. I feel as if we are putting Humpty Dumpty back to together. The disease has left my system so sensitive but the treatment really is building it back up just slowly. I talked to my Dr. for the first time since I've been home. He encouraged me to hang in there and keep plugging away. He thinks we are on a good path of healing, it is just gonna take some time. I have become a pin cushion! Have to say I grew a little tired of the shots this week but it is truely worth it and gotta look at the big picture. My Dr. changed my protocol for a few days and it def. game me a boost. I have recently heard from other local patients sufferring with Lyme whose Dr.'s actually rec. chemotharapy and even put them into a medically induced coma for a few months. Unreal. I have no idea how this would be good for their body or kill the spirochettes. There is so much that is misunderstood with this disease. I am so unbelivably blessed to have had the opportunity to receive this treatment. It is not easy being out of town from your care providers but it is working. They are quick to getting back to you and sending what you need. And more importantly they are not stumped by my questions or by my symptoms. I am grateful for their knowledge. Praise God from who ALL blessings flow! We are going into our final week of school. Wow, how fast the time goes by. Michael just got home from being out of town this past week....it was tough at first but as I started to feel better it got easy. It is not the kiddos, it is just me able or not able to do what is needed. It is such a joy when it comes without having to push through. Our summer will consist of some summer camps, swim lessons, piano and a couple trips. I will keep you posted. Please continue to pray for me as I am adding 3 more shots daily for a month. That I will do these faithfully and not have any negative reactions. Pray for my body to continue to heal and strengthen more and more each day. Please rejoice with us as we continue to give thanks for all the Lord has provided in our lives. May we bring Him glory and honor!
CommentsHi Everyone. I am sorry it has been a while since I have updated. My hope is to do it once or twice a week. We are still on this journey and there will be a lot to share. Please keep praying with us as we proceed with the homecare treatment. I was so excited when it arrived. Because I wasn't doing so well my Dr. changed the protocol for 3 days. It definitely made a difference. I felt a boost by the first evening. The communication with Sierra has been great. They have checked in with me and followed up numerous times. I have so much to be grateful for! After, I wandered around the house the first few days not feeling well or knowing what to do it eventually got better. What an extreme difference after being at Sierra for 5 weeks. Everyone was so eager when I returned. A bit overwhelming I must say. By, the first weekend I was able to get back to doing some housework, cooking, enjoying church, transporting kids to all places. Before going to Sierra I was not functioning; unable to do any of the simple things without dragging or pushing myself. I have been able to get up most mornings, make breakfast and take the kids to school. We have even survived when Michael started travelling again. I am not feeling a huge difference yet and some days are definitely tougher than others BUT, I cannot begin to tell you the joy I have in doing the basics for my precious family. I see the smiles on the kiddos faces and my hubby has made many wonderful comments. There are obvious limitations that I am fully aware of and surrendering to. I still need some good naps here once in a while. The difference is that I am not falling asleep at red lights (I know, crazy) and when I do sleep I am able to wake up on my on. Before it took lights, sirens, hours, people jumping on me and so on. The treatment I am doing from home is time consuming and a bit intensive. Each week it changes a little and I am learning much as we go. There are many shots but only one of them hurt. Most I do myself but there are 3 of them that I prefer not to do; that's where my dear sister Debbie has been such a huge help, encourager, teacher and friend. She has walked Michael through giving them as well and he is able to do them now. Even my mom has given me one with the help of Debbie. Unreal. When she was done she high fived me!!! When you feel bad enough and you desire to be well again you are willing to do the work. I am following everything they gave me to do and will continue as long as necessary. I am on some supplements and have some homework to do...hehehe. Things that I have to continue or start up while home. For instance, infrared saunas. Thankfully, one or two are actually enjoyable but all of it is so expensive. Most things I am doing are to build up my system: to revitalize the organs, strengthen my immune system, continuing to kill off any unwanted viruses and for organ detox. It is so great to be under care that is showing results and to be guided by those who have such a great knowledge of this disease. Please pray as we continue to follow up with our insurance hoping they will pay for some portion of all of this. We got our first homecare bill that lets us have some idea what to expect for a minimum of 6 months. Michael didn't even blink: his response was the Lord has already done a great work as He is the one who has provided all things every step of the way; we will continue to trust in Him. Praise the Lord! I still strive to keep in touch with I met while at Sierra. There is so much that I want to share with all of you; so much the Lord has done and continues to pour out to me. May "The Lord lift up His countenance upon you and give you peace" Num. 6:26. I came across this today; Believe that the deepest afflictions are always neighbors to the highest joys. Our afflictions are the highway that leads us closer to God. There is strength promised for you, for "as your days, so shall your strength be" Deut. 33:25. My Lords understanding is unsearchable.
CommentsThank you all for the welcome home notes and encouragement. It is so uplifting. It has been quite the past few days. I woke up Saturday morning not feeling well at all and it hasn't lifted yet. Not how I pictured coming home to my lovely family. I don't think it is how the kids pictured it either. Michael, has been fabulous and has constantly been encouraging me. He is right there to remind me what these past five weeks consisted of and not to be expecting to much of myself. It has been wonderful being back in his arms. The Lord has blessed me with a good man to lead me and our children according to His word. Praise God! I can see how the kiddos bonded with their daddy while I was away. My heart is overwhelmed with gladness. So, these past few days I have shed a few tears, have had moments of fear welling up in me, not wanting to press on with having this pain and fatigue. Such a downer but worse such a sinner. How can I not be so grateful with all that has been poured into my life directly from my Lord Jesus. How can I question His plan for me when all along He has directed my steps, provided abundantly, blessed me with the most precious family and greatest sisters in Christ. He alone layed down His life for me and has promised to lead me all the way through this trial. If just shows me once again how much I need Him and cannot for one moment take my eyes or thoughts off of Him and His word. A friend reminded me today that I have only been focusing on effectively battling this disease for the past 5 weeks; there is still much healing ahead of me that needs to be done. Patience. I should know better than looking down the path when I know all to well it is to be taken one day at a time. Facing the present reality that I am still not well and yet am still a wife and a mom makes my heart ache. I pray for joy and content in today and strive to do my best by my loved ones and esp., God. What is true this very moment and what can I do to make the most of it needs to be my perspective. I cannot do this without the Lord. Tomorrow I should receive my home care which consists of mainly shots...I believe it is 32 a week. All but one I can give to myself. I am so excited to receive this so I can get back to work. I am so willing to do what is necessary to work towards improving my health. Never thought that would be a package I would long to receive but my sleeves are rolled up and I am anxiously awaiting. The meals have been so yummy and great to pull out and fix for my family. Thank you all again!!! You continue to amaze us with our kindness, love and conern for our family. I will continue to update you and hope we can bring more awareness to others through this web page. The Lord is not finished with me yet!!!
CommentsAfter waking up at 6:00 and traveling east we arrived home at 3:00. All went well even the bumpy landing. Mom and I were so excited. I even lost her on the way off the plane....I was moving forward with no looking back. It was be the best moment seeing all of them and hugging them as if to never let go! I couldn't peel Mia away if I tried, both she and Lizzie said Mom it has been to long. Michael took us all out for an early dinner. When we got home it was back to the norm around here. Ryan wanted me to watch the NFL draft with him. He also gave me a beautiful necklace. The girls were ready for American Idol karaoke and to perform for me. Too funny. I didn't mind just at least I could sit on the couch. Lots of love and laughter all around here. I do miss ya mom!! It is good to be back in the plains. Love that everything is green and blooming. My hubby and kiddos planted lovely flowers in our walkway. Thank you to Deb,Rhonda and Renee for my welcome flowers, balloons and cards. I was so hoping to wake up and feel amazing. My mom had to remind me what these five weeks conisted of and I have much left to do with homecare. Isn't that crazy that I have to be reminded?? Some folks do have quick results...some do not go backwards but stay the same....others take a year before they notice a difference. For me well, my bloodwork looks better and now we are hoping that I will not be left with many residual effects. Keep praying as I continue to press on. I didn't bring anything home with me but, instead chose to have them send everything out on Monday. So, as soon as it arrives I am back to work. But, this time no daily IV's, pushes or being so far from my loved ones. Yeah!!! Kelly, I am praying and hoping for the same things....pain free or even just less pain and increase in energy sounds terrific!!! Love you all and thank you for praying me home.
CommentsDear Heather, I knew my mind was slipping. You are unforgettable and so are the many ways you have helped our family. Michael and I are so thankful for you and John and that our children are at Berean together. Thank you!
CommentsThings we will not miss in Reno. 1. Time change 2. Jack in the box commericials 3. Daily Pushes 4. The European Spa....hahaha...inside joke! 5. Living the movie Groundhog Day 6. Breakfasts at Homewood Suites 7. Having Gene searching for a vein 8. Our wardrobe that we packed for 2 weeks but turned into 5! 9. Hurrying up and waiting 10. Mom says Whole Foods 11. Having my mom be the "time natzi" 12. Eating out daily What we will miss.... 1. The people 2. Seeing the mountains every morning 3. Sharing our faith daily with others at the clinic 4. Praying with Joy and...well...ummm.....Okay we are beyond ready to come home. Our blessings are to abundant to count. The Lord has made provisions for this time in our life long, long ago. Thank you dear Matt,(my dad), for taking care of ALL the traveling, car and hotel arrangements. Your the best! I am so grateful how you graciously supported Mom to come and be with me all this time. You have not complained once and have shown me so much love through your support. Thank you Mom and Dad Dunbar for taking care of my precious family for the first half of this journey. You provided a much needed routine, love, help and comfort for everyone! Thank you to all of you who have sent endless words of encouragement and prayed for our family. The Lord has provided us with amazing family and friends. Thank you Aunt Kathy and Uncle Bill for making this opportunity possible through your love and generosity. Your support has overwhelmed us with a lifetime of blessings. So many of you have looked out for my kiddos and helped care for them, cleaned my home, made lunches, stepped up to serve in my place at church and so on....so a very special thank you to Debbie, Rhonda, Angie, Krisi, Brittany, Jennifer, Christy, Sheri, Renee, Melinda, Jen, Linda, Kelly, Carol, Betsy, Sandy. I hope I am not leaving anyone out. There is no way we could of done this without you. What you provided is beyond words...truly love in action. God is so good! Tony, well what can I say. He cleaned up my mispellings, spoiled me with amazing pics/videos of my treasures, kept this webpage going and has been a constant friend to my hubby and me. We love you! Michael Lee, I cannot wait to be back in your arms. I really do not think I could of done this without you; I know I even surprised you! I praise Him daily for giving me such an amazing husband who loves me through His strength esp., in sickness and in health. You are such a devoted daddy and I am so proud of you and the kiddos. I can rejoice in knowing that the Lord is your strength and joy too!! Mommy, well what could I possibly say. Once again we have had an adventure. Before the foundation of the earth...He knew me and He knew the wonderful mother that would raise. None of this is a surprise to Him. He has provided all the way and it doesn't stop here. I love you and will forever give thanks for your strength and faith in Him. You are such a beautiful person; a true servant of Christ; never waivering. I didn't even know you had this in ya...wow! My last few days have been exhausting with hard pushes and a constant schedule. Sleep has been very difficult too. I have much to do when I get home for home care. It is beyond what I expected. Again it will be a one day at a time perspective. Before I came I thought I would be home quicker and without symptoms. I am not discouraged that they are still present....I know my body has been through much and there is still alot to do. I think I shared before that it is like the clean up after a tornado. I pray that the Lyme is truly gone and does not return. I will do all that I can but I know who is in control. One of the male patients said he was jumping around screaming when a mosquito landed on him. Living in fear is not an option. Life is to short and precious and that would be limiting a limitless God! I will be giving myself 30 shots weekly for the first month. In two weeks I will have a phone consult with my Dr. It was really tough saying good bye to everyone. I am gonna try and keep in touch with some of the staff and many other patients. We joked today that maybe we could all schedule our 6 month follow up at the same time. This is time has impacted my life and I will never forget these moments and all of the Lord's grace. This blog does not stop here so stay tuned it! Daily, I have look forward sharing with you and hearing from you. Please pray for our travel safety tomorrow...the plan is to arrive in Kansas City at 3:00. If you notice the time you can picture one happy family being reunited. As Mia cried tonight I said one more night baby. Pray that I will not crash when I get home because of all my body has endured. I pray for the simple things to be apart of my dailies without the struggle and that I will observe my limits. Above all I pray that I am a joy to my family, a great help, thankful for no matter what the days hold. Mom and are hopeful that we have scattered many seeds in Reno!! What-ever our ups and downs are, we can never be removed from our ordained and appointed place. We are held by infinite love! May you see His grace and presence in my life, Jodi "If God is for us, who can be against us?" Romans 8:31 The Lord Jehovah is our righteousness and everlasting strength. Is. 26:4 "Trust in Him at all times" Ps.62:8 Trust in the shadows of His wings. Ps. 91:4 "You are my rock and my fortress" Ps. 31:3
CommentsWell, I know you all wanted an update. They have looked at my blood under the microscope far and wide and could not find ONE spirochete or spore!!! They said they could be in the tissue but nothing was visible. Praise the Lord! My white count is also under 5....it's at 2! I went from 18 to 2. This means my immune system is up and running again and no longer confused. My red cells had thick round walls and looked great. My liver and spleen no longer look under stress. We are on our way! Coming out here was definitely worth it and produced good results. I still have 3 important tests that are not back and won't be for a few weeks. My food allergies are still giving me problems and we're trying to get those under control. That will reduce the inflammation in my body and reduce my pain as well. I'm also beginning to come off of my 3 prescription medications; turns out I'm allergic to two of them. That will help as well. Plus, we are still tweaking my thyroid. I don't feel a whole lot different yet, but I'm beginning to see some changes. It will continue to be a journey. We've been blessed with the results we desired. I serve an all-sufficient Lord and Savior. He has brought us to this point and will continue to lead us all the way. My case may have been tough for them, but not impossible for God. The disease has been entrenched for all these years, and we're peeling the layers away one at a time. My treatment does not end here. I'll be bringing home 3 months worth of meds and staying in touch with my Reno doctor. Tomorrow I meet with him to discuss the specifics. Typically, they like their patients to come back for re-testing to see if there is a recurrence of spirochetes/spores in my blood. I so hope to have my hubby come out here for testing and treatment. Knowing that Lyme is alive and well in our area, and that I could be re-infected is unsettling, but I'm not devastated because I know who is in control. I'll do all that I can to follow their protocol and protect myself, and I'll do it all through Him who is my refuge and strength. I trust in my Lord. I pray I can assist in getting a Lyme awareness month started in our state, and encourage others struggling with chronic illnesses. Another huge praise is that one of my doctors from Kansas City will be arriving at the clinic on Monday to learn about Sierra and their capabilities. Praise God! That's an answer to prayer. There are two doctors in our area who are believers that desire to help patients with Lyme in a greater way. Wow! What an awesome day. May you rejoice with me because this is the day the Lord has made!!!!! Gotta get back to the clinic. Hey, Lizzie they got that tick!!
CommentsHi Everyone. I'm amazed to hear how many people are viewing this site. Please let me know if we can be praying for you or providing any additional info. Please know that I am so grateful for the Sierra clinic. The staff is amazing; such hard workers, great attitudes and an upbeat environment to be in. Plus, being surrounded by others who have had similar trials can be encouraging. I care deeply about the others here and want so much to see them have complete healing. It's a tough disease and can do a lot of destruction over time. Getting rid of the Lyme is one trial; cleaning up the wreckage is another. Some folks have very quick results, while others may take a years. It really depends on the immune system, previous prescription med use, and the number of years the disease went undetected. For me, my results indicate that I've had this since probably my teen years. Through the darkfield microscopy, I got to see the spirochetes in action and the spores filling up my red cells. This alone is worth the trip. I finally got an accurate diagnosis and gained knowledge about this disease. While at the clinic, I did do go through a lot. It's not easy, BUT, it's worth it!!! I've been sick for so long, and unable to carry out daily activities, but I've learned to find courage and press on. We all have to remember: one day at a time. They really do know what they're doing at Sierra. If you have been on a similar road, I'd encourage you to take time to visit the site. I'm doing well. A bit beat up from last night and slow moving today. I was able to have bloodwork today and my IV. I had to take some extra fluids because I was dehydrated. I went up one level tonight; I knew my body couldn't take any more. Tomorrow is a huge day. I have my darkfield at 12:30, and ask that you pray that I would receive the results with joy and hope. Thank you for walking this journey with me. I carry all of your encouraging and loving words with me always. May I finish this week strong and take each opportunity to share Christ's love with others around me. As a believer, I'm "strengthened with all power, according to His glorious might, for the attaining of all steadfastness and patience; joyously giving thanks to the Father," Colossians 1:11-12a. Please pray for the patients here. There are many who are physically sick and hurting, but more importantly, they are spiritually hurting and trying to do it without the Lord. They are empty and do not have an eternal hope. Please help mom and I to be a light for Him.
CommentsHi wonderful family and friends. I'm just waiting on my shots for the day. Just wanted to share with you that today has been full of the Lord's blessings. I'm grateful to report that they found a vein easily in my right hand. They said I was well hydrated (that was a first.) Kinda hard to be after running high fevers nightly. Yeah!!! I hope it continues each day. Everything else went equally great today. It's a nice to way to kick off this week. I'm a little tired and in pain, but doing very well. Praise God! So filled with joy just thinking about my family. Mia said "When you get home, first we will rest and then play games. Oh yeah, can you get up in the morning now? I really want you to wake me up everyday." Oh the simple things in life. I will never take these things for granted and I pray I can accomplish such simple things when I return. The doctors said that after these 5 weeks, my body will definitely need a lot of rest, and the journey continues. Wednesday will be my big day when I can see the blackfield again to see what's going on in my body. As you can imagine, I'm both very excited and nervous. I have followed where He has lead and done all that I could. My life is in His hands and He knows me better than any test or measurement that man can do. I'm comforted knowing that I have the Savior of the world caring for me, my family, and our future. I'll keep you all posted. May you sing praises to Him for all the blessings your life holds.
CommentsMom and I had such a nice, relaxing day. We headed south to Truckee, CA which ended up being a cute little place. We just walked around and visited the shops. Then we decided to head north to Lake Tahoe which was amazing. God has created such beauty for our enjoyment and His glory! The water is really like glass...so clear and still. You could see the mountains and the clouds reflecting off the water. True beauty that only God could create. We were blessed to see His works. Coming down the summit was quite fun, could not imagine it in the snow. What a different landscape to go from the desert to such beautiful pines and water. Great way to spend the day. We returned to the hotel about 4:30 and got our jammie on for the night. I napped and mom read. Loved talking to my my family and hearing all their voices. Thank you dear Debbie and Anna for treating Meg to such a wonderful day! My day begins at 10:00 tomorrow. We are started a big week. Kinda of a big push on the treatment level and many hopes to see amazing results. I am SO ready to return home and I pray that I can have this part behind me. I realize there is still much to be done as I continue to walk daily in Him. Many of you say I am strong but I'm not. It is ALL Jesus working in me! Please may you all give Him the thanks, the glory and praise.
CommentsTony, that was fantastic!!!! Loved it! Ry did really well....I was impressed. Thanks for the laughs. Mom and I are headed out for a lil adventure today. We are going to Truckee, CA, which is just about 30 minutes away. Looks like a cute lil town with a beautiful landscape. It is so pretty here today and that just seemed like a relaxing plan. I did not get a great night of sleep; had a reaction to one of my shots. Started the day with another lymp. massage which is the best part of the treatment! Gearing up for this week...may it be the FINAL one!! I am anxious to get home and to be well. Love, Jodi
CommentsHi. My hubby and his buddies think I was a bit dramatic on the dog shaking scenario. I said I first typed shark and thought that was a tad dramatic. I thought my example was appropriate. Think of Woody from Toy Story! Anyway, I'm doing better now. It's amazing. It's kinda like having a baby and I say never again but, that really isn't true; except at the end of this episode, I don't get a baby. All I have to say is if you have to do this treatment and haven't had a baby yet, it will totally be a piece of cake. And if you've had a few babies, it definitely prepares you for this as well. Having a baby is just way better. Moving on, Mom and I had a lovely day in sunny Reno. The sun shines here just about every day. I'm loving the warm sun!! Slept in late, then drug myself to the treadmill. Got my hair done. Mom is going on Monday. My Dr.'s wife gave us a great recommendation. Had linner (lunch/dinner). I think I'm definitely allergic to tomatoes. I am sad; not fair for an Italian. I guess I'll just be giving myself shots. Mom and I are gonna watch a movie and head to bed. Only 8:00 here. Have a blessed Sunday worshipping our Lord and Savior. Psalm 55:12 "Cast your burden upon the Lord, and He will sustain you; He will never allow the righteous to be shaken."
CommentsHi. Just wanted you to all know that I'm doing okay. I had one vein left that was usable. I took no IV's so they could save it for the push. The push does just that; it pushes all the yucky stuff to the surface and moves it through my body. I stayed with the same level that I did last night because it was a rough one. Tonight was surprisingly worse. What protection that I did not go higher. 103° fever and shook the covers off the bed. I talked with Deb tonight and she said my voice is sounding stronger, and asked "How are you feeling right now?" My answer was that I felt like a big ol' dog shook me to the point of near death and left me there; like road kill. I'm tired and I wanna come home. Please pray for wisdom, and for my veins to be healed for Monday so that I can have my bloodwork done. I'm suppose to drink lots of water, exercise and ice the inflamed part of my arms. The weather is beautiful right now, and I hope to be able to rest up mentally and physically for this final week. I know the Lord will show us what to do. I'll write more this weekend. Bless you all! We are praising God for ALL of His provisions and for never forsaking me. Have you been to the place where no one else can help you, provide comfort, give you peace, strength beyond understanding. Lately, I've been incredibly blessed to have been there often. The fire will not burn you and the water will not overcome you. He is my all in all! Praise the Lord for being on the throne!!
CommentsI am gonna
try and write as fast as I talk. Back to the room after a looonnnggg
(but good) day! First, last night went okay. It was rough but I could tolerate it. Quite dehydrated today, so they gave me extra fluids. They were able to use the same vein today.
Yay! but ouch. Continue to pray for my right arm to heal up. The needle got bent in my arm the other day and the meds went into my tissue
which has caused inflammation. It's doing better, but still red and sore. Need those veins! Had a lymphatic massage today.
They're trying to work out all of the built-up of toxins in my body. Met with my
doctor today and my blood levels were all over the place. This was of no surprise; in fact, he told me we would see this before it got better. The meds are bringing everything out and it's a lot on the liver/kidneys/lymph system. My hope is that next week will show a swing in the right direction. I pray we can see good results next week so my treatment can be finished up at home and not need to return any time soon. I know all things are possible with God!! Tony, thank you for the awesome new video of the kids and friends!! I LOVED it! I was SO hoping you would do that.....thank you, thank you. Will one of my friends please cut lil Mia's bangs. Anyone...really....I trust you. Hehehee. The kids look great and I love to see them laughing and being silly. Just warms my heart.
Eight more days!!! Michael, the kiddos are so blessed to have such a devoted daddy. I love you and thank you for all my sweet calls today. You're the best! Continued overwhelming thanks to all my dear friends that have JUMPED right in to help. You have showed our children and everyone around us what love in action is.
Thank you for serving us in such a selfless way. Mom is hanging in there with me; we're doing
well. Only driving each other crazy once in a while. A friend I was recently in touch with after 20 years commented that
she knew my mom and I would still be together, hand in hand. I know what we share is rare. When Michael and I became one, we left our parents homes; but my mom continues to love me in a way only a mother can, especially through these trials. Her love is selfless, and has
prepared me to love my family in the years to come. I'll be forever grateful for her
sacrifice and devotion. Not one complaint being here all this time away from her home and hubby. She is missing the grandkids like crazy.
She cries right along with me as we pray or see all these videos from Tony. She cannot wait to see them. Don't see how we could ever live any farther from each other. Love all the recent encouragement. Such a help. Kathy and Deb, I am loving my i-pod and all the music. It gets me through each night through these pushes. Up to a
1L tonight. Hope I'm just brave and not stupid. Never thought I would get to this strength
-- only 3 more levels to go (if I can tolerate it.) Symptoms starting to
kick up....I am ready to shake, rattle and roll. Better close for the
night.
CommentsHi. Just wanted to share my praises with you. Woke up with the sun shining. Gene found a vain in my wrist!!! Have my other armed wrapped, iced it and hoping the inflammation comes down. Had a yummy lunch at Baja Fresh with mom. Mom was able to get out today and have a break from all of this. Talked about the Lord today with others who do not know Him. Have given myself 5 shots and 12 more to go over the next week. Brave enough to go up 2 levels in my pushes tonight. I pray I can tolerate this level and have great productivity from it. It's 6:00 here and I'm in my jammies and climbing into my bed. I'm striving to rejoice in each day, for this is the day the Lord has made. In everything give thanks. 1 Thes. 5:18. In His Love, Jodi
CommentsI'm just waiting for my final part of treatment today. Pretty tired and aching terribly for my family. Mia asked "When are you coming home? It's been so long, Mommy." I feel the same way. I pray I can return home with some end in sight of this journey. I'm doing all that I can, but it's in the hands of the Lord. Mom and Michael asked me today if I felt any better yet -- not the question I normally like to here. I still do not notice any difference. As I gain knowledge on this disease and how it has affected me, I know that it has entrenched itself in my body. This treatment, along with time is necessary. It's tough to see people who are just noticing a difference a year later. Each one is so different. We posted a new video on the homepage that explains this disease and how the treatment works. It's a little dull, but full of accurate info. It really breaks it all down for ya. Please check it out! Last night went okay, kinda like the quiet before the storm. Stepping it up tonight again. Going into it weak, but I know Who is strong. My veins are taking a hit from all of this -- my right arm is the only one usable. My veins are too small in the left arm. Funny, how they go sideways in my other arm. They're hoping they can hold out for another week, as my veins are beginning to collapse. Please pray. They are the best I have ever had doing it. Love you all! Thank you Renee for looking over Ryan at the field trip. I can just see his beaming smile at the top of the capitol building!! Please hug my kiddos extra tight for me. To God be the glory! Thank you dear Faith for caring for me and my family. We will trust in the Lord with this and you keep taking these requests to Him. We will persevere, right!? How I long from May on to always be seated with them in church.
CommentsI'm living the movie Groundhog Day!! Today started out slow and rough, but it certainly got better as it went. Yeah!! So very thankful. Wow, that "Hornet" shot hurt today. I was so proud when I gave myself the first of many shots. Pray for us to blow those spores up this week and figure out my allergies. I got my push about five today so far so good. They started me out on the same level I left off with on Friday (I'm at a 3L+++.) I know that doesn't mean anything to ya, but these are huge hurdles for me. Tomorrow, I hope to be able to do a 2L, then 2L+, then 2L++, and then we go to a 1L. I'm on target to get through them before I plan to get home, Lord willing. Each one is kicked up a notch or more. I asked before I left tonight, what can I do when the pain and headache get to that intensity?? Their response was, "After you have suffered for 6 hours, you can take something." I begged Mom to call 911 last Friday night. No turning back. I pray I can rest in His comfort throughout the night. The Lord continues to amaze me through His love, faithfulness and power. My verse today was Galatians 6:9 "And let us not lose heart in doing good, for in due time we shall reap if we do not grow weary."
CommentsI hope you all had a lovely Easter! We were so blessed to wake up to a phone call from Tony Ways. He was able to successfully connect us to the MRBC morning service. We couldn't clearly hear all the wonderful music, but we heard Pastor Rod perfectly. He delivered an amazing sermon. Mom and I felt like we were right there worshipping with our family. Thank you Tony. It was an incredible blessing. If you can, will you post a link to our church so others can see and read about our wonderful church family? (As requested: www.MRDBC.org) I have not left our hotel all weekend. My body pretty much collapsed and I gave in to the needed quiet and rest. I pray I can awake tomorrow feeling physically strong to begin a new week. I have many hurdles to still overcome. I know it is a lot for my body to go through, but I can say that's not damaging like the antibiotic treatment I was on for many months. Instead of killing my soldiers (white count) it's strengthening so it can identify and attack this disease. It helps when I'm going through so much to know it truly can help my body in so many ways. Just like Ryan said, it's our prayer that God will do a great work in my body and heal me. I got the greatest phone call today from a van full of happy kiddos. Over last weekend I picked up some Easter basket goodies. My friends Debbie and Angie helped as well. When I heard I was not going home yet, my heart sank for many reasons. Mostly, because I ache deep inside for my family in my arms. My mom went into action and mailed all of the things I bought to Debbie, who then put all the baskets together. They received them after the church service today and were thrilled. Ryan said thank you mom for taking time to do something so nice for us when you're not feeling well. That's what we mom's do☺ The little gestures and touches make a difference in times like this, and we know what is priority and what brings true joy. Having treasures like my constants: Debbie, Angie and Rhonda are a big part of that joy. Rhonda, thank you for looking out and caring for Mia this week. She is so comforted by you and I know she will be blessed, nurtured and safe in your care. Words could not express my gratitude. Thank you for caring for her so much to help me decide the best way to plan out this week. I love our newsie updates on my kiddos. Ry said he loved the "Darkening Service" and his time with Seth. Praise God for leading us to Berean. Debbie pointed out what provision it was to place Mia in school this year. Wow, that is so true. You know how I agonized over that, not wanting to give up time with her. The Lord knew better and guided us and gave us wonderful friends to encourage us. His love is amazing! May you continue each day forward to rejoice in the truth that Jesus was our substitute on the cross. As He was perfect; without sin, paid the penalty of our sins and willingly gave His life. He did this so that we could have eternal life with Him. It is finished! He is no longer on the cross, for He had victory over death and is seated at the right hand of God. He lives!!!! Please continue to pray for my husband and his strength and health, for our children's safety and faith and for my continued steps to be healed. Thank you dear Linda F. for being a constant in my mom's life and mine throughout this time away. May you all keep praying for my mom. I love you Michael!!!
CommentsTony, I cannot thank you enough for the slideshow from the farmer's market. The pics were amazing. Tears just fell from my eyes. Meg looked beautiful. I adore her. Gabrielle cracked me up with that soda can picture....is she you or what? Give her a huge hug from me. It looked like a beautiful day and lots of fun. I'm sure the Steeler fan made it extra special. Hugs to these grandparents too!! Thank you for including Meagan in such a special day! Well, I do not remember when I last updated. How am I today? Depleted. I slept til noon and haven't been on my feet for more than 2 minutes at a time. I think my body is screaming for rest and I am all to happy to oblige. Yesterday, went pretty good. I was able to sleep right after the shot but then came the pain and then the headache. Yes, the headache, one that I have never felt before. I couldn't stand or open my eyes. Praise God for the sleep that he provided and the safety. I am to begin 6 shots a day....yes I give them to myself. Three are for neutralizing the prescriptions I have been on and for the damage they have caused. The other three are for allergy testing; still trying to figure all that out. Pray I am strong enough to begin them tomorrow. They want me to already feel well so that I can notice any reactions. Today, it would take a brick! Many of you of shared your concern for me and my safety. Wondering how and if my body can withstand all of this treatment. With the Lord--yes. He is my strength and protector. Please continue to keep us in your prayers. The treatment is intense; I knew that before coming. However, only until you experience it can you understand how intense. There is no turning back. Breaking the treatment up would only set me back. Staying is important and I hope it will allow me to not have to return this year or for years. As far as their technology and eyes can see, they believe they can wipe out the Lyme. The tough part is strengthening my immune system and repairing all the damage this disease has caused. Please pray that I will be well on my way at the end of these two weeks. I will be coming home with 3 months of homecare but it will not be as intense thankfully. Our bill on Friday was a shocker. It ended up being double what was predicted. This past week brought a few surprises to us but the Lord already knew and provided! In Him we rejoice!! Mom is doing well. I'm hoping she can stay at the hotel or do something relaxing while I am receiving the IV treatments over the next two weeks. The nights are getting harder and I pray she stays protected too. My heart aches that she has had to watch me go through this and how I have called out for my hubby. I am still certain she is the one who should be here. Michael is focused on work and caring for the kids. They need him. One of the kiddos said every time I am apart from daddy I just pray for him to be safe and for me to trust in God! My precious Meagan called me last night and was so encouraging. We were blessed with such a wonderful moment. She played the piano...every hymn she could...and I was to guess which one it was. Then she sang them to me. I had given her verses to read before I left so she read them to me and shared which one were encouraging her the most. One I remember was "Heaven is the Lord's throne and the earth is His footstool". The other one was Romans 5:1 "Therefore, having been justified by faith, we have peace with God through our Lord Jesus Christ, through whom also we have access by faith into His grace in which we stand, and rejoice in hope of the glory of God. And not only that, but we also glory in tribulations, knowing that the tribulation produces perseverance; and perseverance character; and character, hope." Meg said "Doesn't this verse fit us perfectly?" When she prayed, she asked that we would be light through this trial. I love my family and am grateful for my family that the Lord gave me! Bless you all and Happy Easter. I will write more soon.
CommentsTo All: wants to watch the Masters thinks Tiger is going to make his move today. He told me Tiger hurt his knee like you dad, I told him not Hi from Olathe, we had a good day yesterday the kids are doing great. We went to an Easter egg hunt at church and then pancake breakfast. Ryan had soccer practice and then we went to get the car washed. It is a beutiful sunny day about 60 we are going to spend the day outside and do some work and play. Ryan exactly. We are all doing pretty well. It is hard to be lonley with 4 loving children hanging on, but at night when they go to bed it does get quite quiet. I had the honor of taking me two youngest daughters to see Hannah Montana's new movie yesterday, wow they sure liked it. All I can say is that it was cute and very clean (should a kids movie actualy bring tears to your eyes?) maybe I am a little more emotional that I thought. Anyway off to finish a busy day and get the kids ready for Easter tomorrow, we are going to be doing manicures, hair, and making sure we have outfits that mom would be proud of (no shorts/t-shirts etc.) Please continue to pray. Thank you all for your offers to help it is more appreciated than you could ever know. I will leave you with the lyrics to one of my favorite songs. Hope that all of you have a blessed Easter. MD From Job 14 Man is born of woman, His days are few, and full of trouble; He springs up like a flower and withers And disappears like a fleeing shadow. If only You would hide me in the grave, Conceal me until Your anger has passed; Then I will answer You when You call my name, When You long for the one Your hands have made. All the days of my struggle I will wait for my change, I will wait for my change to come. Only do not hide Your face from me, Don't take Your hand away, Don't take Your hand away. I will wait for my change to come. From the dust You have made me, And to the dust I will return. Surely You will count all my steps, But will not keep watch for my sin. The falling mountains crumble away, The water ears away the stones. Its torrents wash away the dust of the earth. Only in You will I hope.
CommentsFriday evening update from Sue (mom): Jodi had a higher level shot today. She's in bed with five blankets, 3 comforters, hat, gloves, sweats, socks; all that and she's still cold. But, this is good because we know the meds are doing the job they're suppose to do. Not sure what the next reaction is going to be tonight, as every shot reacts different (I hear her in there singing Praise Songs.) The people that we have encountered during these weeks have their own stories as to how and why they're here. Today a young mom of five is starting treatment and has her six year old with her (don't know how she's going to do it) and with no car here (we gave her a ride to the place they're staying). Its a hardship on all of them here--insurance doesn't pay--plus the out of pocket expense. We have met many believers and have a prayer network going. Jodi and I are so grateful for our faithful prayer warriors and we do feel the blessings of all the prayers. I'm thankful she has the weekend to catch her breath. I need it too. I hope you all have a wonderful Easter. In Him, Sue
CommentsOh, Tony thank you so much. That was awesome!!! For those of you who cannot see my page, I just had the privilege of seeing my four kiddos and their giddy messages. I have never seen such silliness and sweetness all wrapped into one. Just seeing their faces brought such joy into my heart. I needed to see this tonight before going through this push again. Hey kiddos, Nana and I love you too and miss you more than words could ever express. Also, I loved seeing Faith and Rod. I just cracked up!!! Thank you for your constant prayers. Yes, meeting Randy Travis was quite the treat in the midst of my daily routine. Thank you Tony for updating for me last night. It was by far the worst night. Wow, every symptom they warn you about was in full swing. Typically, whatever your initial symptoms are become magnified. It was scary and I cried all night. It's in those moments that you call out to be absent from the body and present with Christ. I never thought I could experience and yet survive such pain (to the point I couldn't stand for my skin to be touched.) Mom called out to many of you to pray at that time, and we both give thanks to have such wonderful sisters in Christ who take our requests to the Lord. How great to know we are not alone. Tonight, my kiddos will hear that I am not coming home yet. We have decided after meeting with the doctor to stay another 2 weeks. Today, I have resolved that it's definitely for the best. I hope to stay these five weeks straight (cannot believe I will be gone this long from my family) and then do homecare. Time will tell the outcome, but my focus must be one day at a time. There is grace for each moment. Pray for their hearts to be comforted knowing that Jesus loves them and will work all this out for good! Tony is going to try and pipe us in to hear Sunday's sermon from Rod. Mom and I are both looking forward to that. Tomorrow starts early so the staff can try to finish their day at a reasonable hour. I start my 3x a day allergy shots tomorrow and just need to post any reactions. We are trying to narrow down my allergies. They have started me on a thyroid med. because I have early stages of Hashimoto's disease (an auto-immune low thyroid disease.) They believe it's a result of Lyme. So glad we have caught it now before it did real damage. Please pray for Melinda and Chris as the prepare to head home to New Zealand. After spending all day with these folks getting to know and encourage them, they'll be greatly missed when they leave. They have a wonderful ministry in their home country that has been so great to hear about. Also, please pray for Joy Springer. She's a dear sweet woman from Sweden. After her treatment, she'll be living in California. She's so tiny and had a tough time today; she fainted while getting her IV's. She ended up sitting next to me and I covered her up. Mom helped her with fluids. She asked if I was a mom and then if we were Christians. She quoted Romans 8:28-29 and tears fell down her face as she held on to His promise of working out all this for good because we are His. She's here alone. She said she's being held up in much prayer and comforted to be around other believers. When I told her we would pray and put this on our site, she was thrilled. Again, I thank you all and ask that you pray for protection for my family during this time. I pray the kids will consistently obey Michael and be helpers for him. I pray he doesn't become weary or worn out by handling so much while I'm away. The Lord does provide. Before I even knew Him, He lead me to Michael. In closing: If your Master had been defeated, you might expect to be blown like chaff before the wind;
but the power by which He overcame, He lends to you. Awaken all powers to the conflict and strengthen them with the hope of victory. Remember this: the Lord's victory is your guarantee of victory, because if the Head conquers, the members cannot be defeated. Jesus has promised, "Lo, I am with you always, even to the end of the age" (Matthew 28:20). In His Grace, Jodi
CommentsTonight's update coming from Tony in KC: Today has been a rough one. Jodi is suffering from all the usual treatment side effects (chills, high fever, blinding headaches, severe shakes) but the change in meds and the acceleration of the treatment has significantly ratcheted up the pain, so much so that she's throwing up. Please pray for her, as she needs to embrace the truth of God's presence now more than ever. Pray that she and Sue both will get a restful night's sleep so that they can have the strength to do it all over again tomorrow. There are no words to express how encouraged both Jodi and Sue are in knowing how many people are united together in prayer for her. Lord willing, update coming from Jodi on Thursday or Friday.
CommentsI know you all want to hear the update. Rough news, BUT, my God is not surprised and I want to share the great part first. I'm down to one spirochete left. My white blood cell count is improving. They want them under 5. I went from 18 to 10. Their only amazement is that I can smile and consider myself greatly blessed. My doctor said I do not know what has been done for you to deserve this, and said I impress her. Please don't be. I just cried, especially for my children. I was told my body was a wreck; that I was currently her toughest case. There are still many spores (the babies.) My liver, spleen, joints, thyroid and blood vessels are all under great stress. I have picked myself up and will press on because He lives. That's why I can face tomorrow. I know He is my healer. He has lead me to this medical center and they are striving to rebuild my immune system and repair the damage this disease has caused. I pray it's His will for healing. I have not lost hope. My hope has eternal worth. I write to you now fevered and in incredible pain. I write because I want you to keep praying and give thanks. For those who are facing physical trials: look to Jesus! I'm a sinner saved by grace alone because Jesus laid His life down for me. I'll live in His presence for all eternity. This is a truth all will know now or regret after death. Thank you Linda and Lee for the break you gave Michael. He sounds wonderful!!! So encouraging!!! He said our home looks fabulous and you put some great habits into practice. Thank you for all of your hard work and love that you poured into our home and family. I know he is so grateful and so am I. I pray your trip home is safe. Rhonda, Michael is speechless and is so thankful that I have such a dear sister in my life. Tony, thank you for being there for Michael. It means the world to both of us!! God does provide. Tony, spends a lot of time on this website that he designed for us. It's been such a gift in my life and I pray it has for many others. I just received the Under Our Skin dvd today. I'll watch it soon and I hope you all will too!! Tomorrows agenda: meet with doctor, get my IV, undergo skin testing, go through an aggressive detox, and finally the shots. I'm finding that ice pack helps lessen the pain a bit!☺ Oh, I had a home care lesson today and learned how to give myself a shot! I passed. Never thought that day would come. Love you all! Please pray for strength for my mom, peace for us both, effective treatment which is being refined on Wednesday, wisdom on when to return home, and that I will not stop giving thanks. Thank you dear Jennifer for the play date for the girls! How did it go???? Good night.
CommentsHi. Wanted to give you an update. Today was long and is still rough. The docs had trouble finding a vein, so I had to have a butterfly IV (very uncomfortable since you can't bend the arm.) The IV took four hours. I didn't feel well when I woke today, and it continued to get more difficult as the day went. Went back to the hotel to nap before my shots and push, but I didn't feel any better when I returned at 5:30. Got my shots and didn't feel the pain with everything already flared. I got a "travel push" straight in a vein in my hand (didn't hurt though.) It's considered the easiest push. They won't let me do a high does when I'm already weak. Still had a slight reaction added on which is productive. Tomorrow, my day is quite booked. Start with bloodwork/homecare prep (which shows me how to give the shots/take meds etc. etc.) and then IV and microscope testing.....yes Tony gotta use my dots. Please pray that we're well on our way to killing these spriochetes and spores. Then it's on to cleaning up the wreckage that they caused!! I will also have skin testing for food allergies and then my favorite part, The Hornet and The push!!! In order to make it through the day, I need a lot of prayer, grace, faith and strength of the Lord. The plan is still for me to return home on Friday. We will have more answers in the next 2 days on when I need to return and how long. Most likely 3 weeks later. Again, I thank you for the help you are all doing with my kiddos. And my Mom has continued to be a beautiful woman trusting in the Lord. A mother's love is indescribable! I know for certain that I'm greatly blessed with such a giving servant and loving mom. She is a rare gem!! There's so much that's involved with my daily treatment and it's NOT easy to sit around and watch. I'm forever grateful for what we share, especially in our faith. Wow, she's an amazing example to everyone around us here and back home!!!! Linda F., you have been such a dear friend to her and I thank you!! Goodnight. Isaiah 58:11 "The Lord will guide you continually, and satisfy your soul in drought, and strengthen your bones: you shall be like a watered garden, and like a spring of water, whose waters do not fail."
CommentsTony Ways....shame on you!!! He posted a new pic...oh dear. Friday evening started out a little shaky; fever hit 103 and we let it burn for awhile before we started trying to break it. They really want it to burn that high for about 6 hours. I trust it was productive! I'm having night sweats pretty bad, so I think we have peaked my immune system to fight!! I think labor was easier. Saturday was tough. I felt overwhelmed with thoughts; missing my family, getting better, going through more treatments, coming home not better (yet), not being able to come home, having to come back to Reno (although the folks here in this community have been incredibly hospitable and friendly), having the money for all of this, my family being affected with Lyme, wanting to encourage more research out there, etc, etc. Okay, are you exhausted with these thoughts and just bummed out? I was quite down, mad, a bit distant (I don't do so well with that for very long). Thank you Lord for being so merciful with me. My perspective stunk. Who got me this far? Who has provided all my needs up to this very moment? Who gave me the most incredible husband, children, Mom, family and friends? Who has ALL things under control? Who knows what tomorrow holds? They are all the same answer: the Lord Jesus! I'm grateful to know this truth and now I'm challenged to live this truth to the utmost. Joshua 1:5 "No one will be able to stand up against you all the days of your life. As I was with Moses, so I will be with you; I will never leave you nor forsake you." Sunday, went so well. We had a relaxing day and some good laughs. And yummy pizza!! Two weeks without pizza is too long. Gotta keep it light on treatment days so that was a great treat! Tomorrow starts the toughest week yet as treatment steps up more. Tuesday, I get to see results under the microscope to see my productivity. I pray to amaze the doctors. This will be the first time we're checking bacteria levels (spirochete presence) since I started treatment. Pray for continued protection, peace not of this world but from the Lord, and success from of all the treatment up to this point. Michael's folks are heading back to Georgia on Tuesday. I think they're pretty worn out. We're so incredibly grateful for their time, love, prayers and support. I'm so comforted by all the love that has been poured into the hearts of our kiddos. I am especially thrilled that Michael had a chance to have daily help. He's so deserving of that after all he has selflessly done for me. How great to have the dearest of friends JUMP right in to take over and help out! I can battle on knowing that my children are being cared for and loved. Thank you all with all of my heart. Words could never express my gratitude. Mia told me today when you get home we will play my new games, but first Mommy you will rest and I will rest with you!! I love you all!!!
CommentsHi dear friends and family. I'm finally able to write to you. My days have gone well. A little slow getting going, but all has gone well with IVs and meeting with the doctor. Results are coming back from the blood work and other testing. I will comment on that over the weekend. Shots are going okay. Gotta do it! My pushes (which is the shot right into the vein) have been tough. I've had four now. Last night I did okay with it, except my heart rate ran at 120+ for a few hours. They said that's a common reaction for many people, but I'm on magnesium to protect me through that. Tonight, it didn't seem as bad, so hoping it's working already. About an hour after the push tonight, I went into severe chills and tremors. They call this reaction shake and bake!!! I couldn't breathe or stay calm at first, and then I zoned out and listened to my I-pod. Mom said she had seven blankets/comforters on me. It felt like a seizure, and lasted for an hour. Mom laid across my legs, gave me ice chips, and kept telling me to breathe deeply. She was amazing. How scary that must have been to see. They prepared us well for what to expect, so it helped Mom not to panic. Me, well initially I fought it. Our flesh and minds are so weak and rebellious. But, my God is greater!!! My fever has not broken yet and I feel so weak. I feel like I was kicked by a mule. Mom said it's like the movie Ground Hog Day, because tomorrow we do it again. I'm so blessed to know and to have experienced the depths of the Lord's love in such an overwhelming time. I rejoice in knowing I'm in His care and in His hands. He is my strength and my song. I want you to know that as the bill came, He has already provided. The help we are receiving and the promise of help has been amazing...so uplifting. We have been incredibly blessed. It's so true that the Lord does not place anything in our lives that we cannot handle.....because of Him...His power...His truth. This is no surprise to Him, and He has it all under control. I was reminded by a friend that we do not give the Lord permission to be Lord of our life, He is already! We must yield to that fact, and then the peace that surpasses all understanding will guard our hearts and minds in Christ Jesus. I'm not the only one in trials. Everyone has them; they just come in different shapes and sizes. In James, we're promised that there will be many trials, but to consider them joy. Only by knowing Him can you experience this. It's a choice to follow Him and trust and hope in the unseen. I sure do not want to have to go through this and at times I cry out, "Lord, I'm not brave like Joshua or David. Or like Paul and Silas, or Queen Esther." Then I'm reminded it's not me at all but all of Him. He will lead me all the way through. Okay, few other tidbits. Had a very nice visit with Randy Travis today. I was so blessed to learn that a friend at the center just received test results and she is now Lyme free. Praise God! She has been a beautiful testimony and has been through so much. Thank you friends for rallying around my kiddos with cards/hugs and playdates. It's so comforting to a mom that has to be so far away. Mia called me crying today; it was heartbreaking. She just doesn't understand. The days somehow seem to be going by fast but not quite fast enough. I'm so proud of my kiddos. They have stepped up and soldiered on!!! Thank you for all the notes. I LOVE them. Can't wait to read them. Hugs to you precious Nathan. Ruthie, it was so great to hear from you today. I love you all! I'm so grateful tomorrow is Friday!!! The weekend rest is needed. One more week to go and then I will be home with my family!! I will continue a lot of the treatment from home. It's possible that I'll have to come back for more treatment. I'm praying to surprise the doctors!!! Bless you, Jodi
CommentsI'm so tired and not seeing quite well, but I wanted to update all of you on my past 2 days. Hope my spelling/grammar is not too terrible. I trust Tony will clean it up for me!!!:) It's so great having such wonderful friends. Our Sunday was nice and quiet. We went to the movies and saw Duplicity--not so great. The weekend was a good time to rest up and prepare for the week ahead. It was comforting to know what to expect today when I went in. I'm so grateful for the all the staff; they enjoy being there and believe in what they're doing. So refreshing!! I was blessed to meet some new people and visit with quite a few patients today. There is such a difference with those suffering who have faith in our Lord to those who are trying it all on their own strength. In the last 24 hours, I was told of two little girls who are battling this disease. One little girl's name is Kaya Raigh; please pray for her and her family. If I had not experienced it myself, I would of never imagined the depths of this illness. My heart aches for them. This little girl is from my hometown, Follansbee, WV. They have declared May Lyme Awareness Month in Brooke County. I pray for wisdom as they seek treatment and hope for healing. Throughout this year, I have given thanks countless times for this affecting me and not my children. It's a very contagious disease and can be passed between husband and wife, and through pregnancy. I see many fearful people at the center; fearful of getting it again, or passing it to loved ones. As I wrestled with those same thoughts, I have chosen to lay it in the hands of the Lord. We do not have control over this; He alone knows what our days hold. We'll do all that we can for Michael and the kids, and through it all, we'll trust the Lord. I can't just say I have faith, and it's certainly easy to say it when all is well. It's time to put my faith in constant action. Pray with me for the protection of my loved ones. God did not create us to have a spirit of timidity (2 Timothy 1:7.) Whether or not they can get rid of all the bacteria/viruses in my body from Lyme, I do not know; BUT trust me, they work hard at trying. The most important thing that they do here is repair the effects this has on our immune system and get it working the way it was designed to. Isn't God's creation amazing? We are fearfully and wonderfully made. Tomorrow begins for me at 9:30 with a fasting blood draw and then IV treatment. After lunch I go back for 2 shots--yes, the painful one. Let's call it The Hornet!! And then comes the push shot. Each one is suppose to give greater side effects. Hopefully, I am mentally strong for it so I can relax and ride it out. This is all temporal!! I love what my dear sister said today. She's hoping that my symptoms will not be too severe, and yet kill off the spirochettes and spores, and that I will once again surprise them. We know that with God ALL things are possible (Matthew 19:26.) My kiddos are doing great. Thank you Mia for the sweetest note. I am so proud of you all. Soldier on and keep looking to the Lord! I'm here for you guys in hopes to be well again so I can never miss a game, see ya at Library, pass football with ya, run with ya on the beach, beat ya at Around the World...again!!! And above all enjoy what the Lord has planned for each one of you! I cannot wait to kiss your lil faces and hold you in my arms! In closing, today was kinda special. I knew that Randy Travis had been treated at Sierra; in fact he is a spokesperson for them. Wouldn't ya know it that I heard that one of a kind voice today coming from the hallway! I was thrilled to have the privilege of shaking his hand and meeting his lovely wife, Elizabeth. He has been a great testimony to his faith and encouraging others battling with Lyme. Very cool!!
CommentsFROM OLATHE: SNOW SNOW SNOW. Everyone is doing well here. Pappie had a great birthday (at least he told us he did, that is so pappie). Very big blessing to have all the help and support. Love to all! Hebrews 12:1-3 "Therefore, since we are surrounded by such a great cloud of witnesses, let us throw off everything that hinders and the sin that so easily entangles, and let us run with perseverance the race marked out for us. Let us fix our eyes on Jesus, the author and perfecter of our faith, who for the joy set before him endured the cross, scorning its shame, and sat down at the right hand of the throne of God. Consider him who endured such opposition from sinful men, so that you will not grow weary and lose heart.
CommentsOoohhh Michael, you might want to check out what Tony did for us. Tony, you are such a dear friend and brother. It is lovely here at 60° and climbing. Quite the drastic change from home. I'm looking forward to going to a nearby park and pond. So grateful for a break from treatment and a sunny day. Having the weekend to rest up and renew my mind for another week will be refreshing. After a lil bump, I'm feeling confident once again in what we're doing. Michael had the opportunity to talk with my doctor for clarity and our direction of treatment. We're getting many answers. I'm not certain what all I've shared, but the Lyme is everywhere. After the spirochettes make their way into the red blood cells, they use them as incubators to make lots of babies. Just lovely. Lyme can effect everyone differently. For me, it has caused inflammation in my blood vessels which explains why I am in pain. Plus, it is destroying my muscle tissue and joints. All of this can be seen under the microscope. It's amazing. You should have seen me showing Michael the photos over the web cam. My liver and spleen are over worked from the infection so they're addressing that. They also discovered food allergies, so we're finding those out -- so good to know what to avoid. I am also allergic to sulfur, which explains my reactions to different meds. Helpful to know. I knew before arriving that my thyroid was showing antibodies so I am awaiting results on that to know if I will need to be on medicine. I cannot tell you how comforting it is to have answers and be able to address them. I'm praying that most of the effects of Lyme are not irreversible. Monday, I have a long day of IV treatment and then on Tuesday, I go back to shots and IV's. One of the shots helps boost my immune system, another blows up the spirochettes, and the one they put right into my vein which attacks the red cells that are filled with the spores(babies). That's the one that brings on the horrible side affects. So far, mine have been tolerable but they will increase the does daily. They want you to have the fever etc., because it shows it is getting in there and doing it's job. The key is to have a reaction that's not too strong so as to set me back on treatment. Everyone around us is very knowledgeable, especially of this disease. My Lizzie is very sad that my doctorss are not followers of Jesus. She said, "Mom they will not have God's wisdom". Bless her. Up to this point most of my doctors have been believers. We encouraged her by reminding her that we have prayed and sought the Lord's guidance every step of the way. He has lead us here had has made provisions along the way. I know I'm receiving good care and they are striving to repair my immune system so it can do what God created it to do. I know who the Healer is. I know that before the foundation of the earth, my days and life were known to Him. I know that He alone knows my final hours and NOTHING can thwart that. I know I will have healing if it is His will and plan. I alone will put my hope in Him. This hope is not like, "Ohhhh I hope it doesn't snow tomorrow!" or "I hope that we can go to the movies." -- it's an ABSOLUTE! "looking for the blessed hope and glorious appearing of our great God and savior Jesus Christ". Titus 2:13. "And now what do I wait for? My hope is in YOU." Ps.39:7. I pray as we have had constant opportunities to share and be light that we will bless others and bring the glory to the one and only true God. Lizzie, may I shine as bright as you do!! Please pray for Kathy who is there for treatment and doing it alone. She does not know Jesus or have a lot of support. Love you all! One week down...I will continue to press on with helmet and sword!
CommentsYeah, tomorrow is Friday. When I returned to the office, I was quite surprised to hear that my treatment plan had changed. There was some definite miscommunication which was quite disappointing. Initially, mom and I both were concerned. They're quite busy there and there was an oversight. When you're putting money, time and trust into your care, you want to make sure you're being a good steward and understanding the protocol they're choosing. We talked with the doctor and other staff and it seems it's all cleared up and we are on our way. Everyone was quite honest and apologetic with it, and thankfully I'm safe. It reminded me of a few things: one, everyone makes mistakes (only our Lord Jesus is sinless.) Two, my God is sovereign and in control of ALL things; although I was surprised by this news, He was not. I wanted to run, get on a plane and go home. I questioned what I was doing here and thought WHAT IF? And then the Lord took a hold of me and turned my thoughts back on what is true. We have prayed and sought Him for all decisions, and He paved the way through His provisions. I am so thankful for all the research and the care they give here at Sierra, however, my trust and hope are not in them or what they provide. My dear friend Debbie had written a card that mom gave to me today full of verses on hope . How timely as they stopped me in my tracks when I cried out to Him. "I hope in Your word" Psalm 119:147. "For we were saved in this hope, but hope that is seen is not hope; for why does one still hope for what he sees?" Romans 8:24. "This hope we have as an anchor of the soul, both sure and steadfast, and which enters the presence behind the veil." Hebrews 6:19. Praise God!! The rest of the evening went well. I did good with my second push. This is given directly in the vein (think of it as a missile set on its target.) It's an aggressive part of the treatment, and can bring on severe flu-like symptoms. Thankfully, my only side effect was a headache. I'm grateful. Tomorrow is four hours of IV treatments -- I was told to eat a hearty breakfast. Looking forward to a restful weekend with my beautiful Mom as we prepare for another week of treatment. I will post more information over the weekend. Please pray for me to keep my hope in Him alone and be safe as I receive this treatment. May you know that the Lord is always loving in the good times and in the bad. He is love, "for while we were sinners He died for us."
CommentsI did ask my amazing and humorous hubby to update you all. I'm finding myself still up (spinal headache and hot flashes.) Lamaze breathing does come in handy, although I didn't do so well with it through labor. They did step it up today; why I'm not positive. Each day I'll have to step it up more, if I can handle the symptoms without crashing. Please pray we progress at a level that my mind and body can tolerate. If not, I could lose days of treatment; I need to get as many productive days as I can while I'm here. They're not confident that two weeks here is enough even with additional homecare. BUT, I will trust in the Lord with this process. A gentlemen asked mom how many times she had been there before because he thought she was so comfortable in her surroundings. She continues to encourage and be calm and strong with it all. I ask that you will pray for Dr. Katrina. She is 71, and quite the lady. She thinks I remind her of herself as a young woman. When I was awaiting treatment in the IV room along with 20 other people, she approached me to ask, "Why do you smile when I know what your blood results look like? How can you smile?" I told her it was the Lord. She said "I called out to Him, but He did not hear me and did not pick me up off the floor." I replied, sometimes He allowed me to stay on the floor too. I encouraged her to go to Him, and she kept saying in her humorous way that He did not listen. So, I said I'll tell you how you can go to Him and know that He does hear. Not sure what time we'll get together, but one way or another she'll hear His word. Oh, I pray I can be a light! I feel so awful and pray that He will lift this pain and bring healing. I've heard it so many times from the pulpit and it encourages me now....Philippians 1:6 "Being confident of this, that He who began a good work in you will carry it on to completion until the day of Christ Jesus."
CommentsThis update is coming to you live via Olathe, KS. You will notice several unique changes. 1. Short and sweet just like my wife 2. I will try not to missspelll words -- Oops! Too late. All kidding aside, today was a very difficult day for Jodi. She had a really rough day. Her treatment protocol was advanced ahead of schedule. She was very drained and heading to bed at 8:30 PST, so I'm writing as the fill in guest host. I'm hopeful that she'll be able to give you more details in the morning. Please continue to pray for peace and comfort. The kids are doing great; really rising to the occasion, very proud of them. Love to all, MD
CommentsA very special hello to Mrs. Walker's first grade class. I can just see all of your sweet, smiling faces. I hope you are having a great day Elizabeth! I miss you too sweetie and love you so much! I am loving being able to share all that you have done for mommy through this trial. I know the Lord has great plans for you. Not to worry...they are finding and killing those lil stinkers just like you had hoped for. Keep being a good girl for everyone there. I did sleep better last night. I am sleepy from all the treatment and today is going to be a long day. I am thankful that the Lord is keeping me strong and protecting me. Nana is doing great. She just laughed when the tea spilled on her...what a trooper! She is taking good care of me and being so kind to everyone around us. Michelle thank you for sharing that about my family....so encouraging. And Lisa it was so great to see your note. Yes, we have met and are encouraging each other. She had a very tough day on Monday but was smiling and staying strong yesterday when I saw her. How amazing to be here at the same time!!! We are grateful for your testimony and the healing that the Lord provided for you. Thank you for sharing! Love to all...need to prepare for today.
CommentsHi Everyone. Again, thank you. Miss Meagan, you are such a dear daughter. I had such joy sharing pictures of you all and how the Lord has greatly blessed me with four fabulous gifts. I am battling this disease in hopes to bring the Lord glory and show you that He is mighty, faithful, ALWAYS good and loving, and HE is YOUR God too, kiddos! Keep looking to Him because mommy is not taking her eyes off of Him. Thank you to my amazing parents. Mom has been a breath of fresh air and a strong woman to everyone around her. She is constantly being so friendly and even giving hugs to the other patients who are there and alone. Her faith is shining through to everyone! When I had to share my medical history, the doctor asked about any traumas in my life. The main one I had was the day my mom had a heart attack. My trauma was emotional, not knowing if my dear mom and friend would be in the presence of the Lord if she did not pull through. I am so glad to know now that she will be in glory when the Lord does call her home. Thank you to my fabulous mom and dad Dunbar -- you are precious to me. I thank God for you everyday! What comfort I have in knowing that you are taking care of everything back home. And I have the greatest Uncle Bill and Aunt Kathy for whom I will be forever grateful :) ! How great it has been to have daily opportunities to share about all of you and how we have been so loved and supported through this trial. It is not an everyday occurrence for those struggling to receive such gifts as we have had. Okay, today was good. I started treatment at 10:30 and got back to the hotel around 6:00. IV went quickly, especially with the sweet company of my mom (and then there is Brenda, Susan, young Taylor, Gene and many others.) My life will be forever changed and I will never forget these faces. My 2 shots went fine -- lamaze breathing is the best. How sweet to have others in the room saying great job. They are such encouragers as they are sitting there enduring the same thing. I am thrilled to see the others who have put their faith in the Lord and shining for Him. They call one of the shots a butt shot. "Hey Jodi time for you b shot!" "Have you gotten your b shot yet today, Jodi?" They are quite painful so they keep it humorous. I said, "we don't use that name in our house -- it's a tushy shot!" heeheehe. I'm only getting half doses starting out and received slack for that from the other patients. "Hey, no fair; how did you get that?" My answer received some laughter. It's nice to be able to have those moments in the midst of these long days. Also, met with Dr. Katrina and received some test results. Not done with the testing yet, but well on our way. Got to see my blood under a microscope which is free to all patients and a part of the Lyme research there. Very cool to see and learn about. I was encouraged from the findings. I'm not going into all the details right now, but I want to share with you that she said when others come to her with the same blood results, they already have MS, are in wheel chairs and worse. She was amazed and thought I had to be strong in mind. How great to say none of me and all of Him. Through it all I have been protected. My blood vessels are so inflamed because of it attacking my red cells and that's why I'm in so much pain in my joints, muscles and connective tissues. They believe by my findings that I am treatable. Tough yes, but not impossible. I'm trying to understand how contagious it is and how one can be re-infected. Yes, one day at a time sweet Jesus. Mia sings that all the time!
CommentsGood morning. Not the best night of sleep...feeling the dry air out here and still adjusting to the time. We head out an hour for my second day. It is mainly a repeat of yesterday but, I will be meeting with another Dr. who will be looking at my blood results underneath a microscope. This is their research on Lyme that is free to all. Very important for gaining knowledge on this insidious disease just not sure I want to see their findings. I don't think I have the stomach for this stuff. Please pray for a quiet day at the medical center...that all patients there will be safe and have good results today...(one day at a time!)...for me to have courage and ignore all distractions. Love you all!!! A big Hello and many Hugs to the Fourth grade and Sixth grade classes of Berean. Hope you all are having a wonderful day and I can't wait to see those smiling faces!!
CommentsHi Dear Friends and Family. I am so thankful to say that day one is down. It was definitely one of the toughest days I have ever had. I am so exhausted but do want to update you all. Thank you to all of you. I am esp. loving my surprise cards that are showing up daily and at different places!! It has uplifted me and brought tears of joy. My mom was amazing today...a smile didn't leave her face as she encouraged me and supported me all the way. We both really like the dr. and the entire staff...such an answer to prayer. The day consisted of a lot of testing and meeting with the Dr. for over 2 hours. We reviewed all of my medical history as well as all of my previous test results. I am grateful for how they are sensitive to me and approaching this treatment. Better than I expected! I had my first IV treatment and 2 shots. This will be needed daily. This day was suppose to be considered easy treatment but as a whole the day was overwhelming. I felt pretty small....not so brave...very hard looking down the road on what needs to be endured. BUT, I know it is wrong to look down the road....this was my greatest lesson this year. Striving to keep every thought captive and one day at a time!! I met some great people. A pastor and his wife from New Zealand. A very sweet lady from Olathe who attends Olathe Bible...I met her as she looked beautiful and smiling; then I came back from lunch to find her so very sick and having a reaction from the treatment. It was horrible to see and hear. It is a very open room as they keep a watch on everyone...the care was amazing. So neat to see all the patients concerned for her and each other. Lots of sharing but is uncomfortable to see for me. I also met a family from Stillwell, Kansas. Unbelievable!! And a few others. It is a non-stop center. The entire staff has a great balance of concern/compassion and humor. I am suppose to be there at 10:30 tomorrow do it all over again with some added testing. Thank you Dad for finding the reference for me....Isaiah 26:3 You will keep Him in perfect peace, whose mind is stayed on You, because He trusts in You. In Christ's Love, Jodi
CommentsTrying to get used to the time change. Had a quiet day here. We don't get our car until tomorrow. With the cool temps, we chose to lay low here in our lovely suite. We have three rooms, each with flat screens. Not sure they will all be used, but nice to have as an option. Matt did great choosing this hotel -- new and in a new area of Reno. We did go out for a yummy dinner at PF Changs (love their dumplings.) Poor mom got a lap full of ice tea at the end of our meal; she was a great trooper about it! Good to rest up for tomorrow and visit with many of you. What would we do without all of this technology? We figured out the web cam and that was such fun to see the family and talk with them. Looking forward to using that while being away. Mia now knows how to call me and did so quite a few times. She and Meg have done very well. Elizabeth has struggled off and on today and I got a very sweet and teary call from Ryan tonight. They will do great with all the love around them with daddy and their Grammie and Pappie. They are so blessed; plus, so many of you have rallied around them with e-mails, encouragement and many hugs. I know they appreciate it so much. Michael and I sure do too!! Plan to head out at 7:30 tomorrow. Please pray that I will have courage, be at peace in my surroundings and whatever I need to endure, and that sharing will go well with the doctors. By the end of the day we should have a treatment plan on it's way! I love all the messages on this site, Facebook, and e-mail you have all left -- thank you! And thank you to a dear friend who gave me a devotional to read daily that once greatly encouraged her. It reads: "You may have losses and afflictions, but they will not overwhelm you. For in Genesis 15:1 it says, "Do not be afraid, Abram. I am shield, your exceedingly great reward.""
CommentsI just have to share some little bits of my phone calls with my lil girls. Elizabeth asked if I was going to go climb a mountain here today or go ice skating on the big lake!! Then she told me she found something from my closet that smelled like me so she took it!! Mia was so funny. When I told her I had a pool at our hotel she asked if I would invite her over when I felt better. Then she asked me when you get home will you play, play-doh with me, do crafts, play hide and go seek and games, go outside and swing? Are you coming home tomorrow? or Tuesday? What are you doing today Mom?? Maybe you should get a back rub. Oh, I gotta go to the bathroom will you go with me Mom? Then she said I am going to put you on the ground but I won't step on you. When she was changing her clothes she said can I lay you on my blanket. Meanwhile, I have no idea where the adults are there. Mia got pretty weepy on the phone after awhile but calmed down easily and kept making plans when I came home. Bless my sweet babies!! It is only noon here...still in jammies. Feeling the weather change and lack of sleep. Thinking a nap sounds very good then we will be ambitious for dinner and who knows!!!! And those who know Your name will put their trust in You; For You, Lord, have not forsaken those whoe seek You. Psalm 9:10
CommentsThe snow capped mountains are lovely and surround us here in Reno! I am certainly not in Kansas anymore. A little colder here as family is enjoying 71 temps. at home. Okay, here is a picture for ya. Mom shows up at the airport in jeans/boots/turtle neck...me in capris/flip flops...she said I was in denial! Our flights were good...first was nice chatting with Mom and catching up on the latest. Second flight had us in stitches thanks to Michael and his uploads on my i-pod....he kept us guessing and had some comedy added in... Yesterday, was a good day with the family. Another pretty, sunny day at home. Lots of time to play with the kiddos and enjoy them outside. I mentioned needing to drink lots of water the day before so my lil Lizzie made sure I did just that. Mia made me lovely pictures and the kids all traced their hands on paper for me. We all shared time in God's word and in prayer before going. Elizabeth knew what she wanted to read...she has gotten so great at reading!! When she prayed she said...Lord, may you make my mommy better but most importantly bring her home safe, she is our mommy and whether she is better or not doesn't changed that or who she is!!! We had the grandparents take her to lunch and leave before us... to tough for her to go to the airport. I held it together until she walked out the door holding an 8x10 framed high school senior portrait of me! Meg was right there to hug me. Our trip to the airport was quiet...Mia and Ry fell asleep. Michael kept it light and full of laughs at the airport which helped us all! I miss them so much. It is just not the same not having them all here with me walking through this....we have done it all together every step of the way! I am blessed to have my mom here and how wonderful to know all is well at home. I am fully confident that Michael and the kiddos are in more than loving and capable hands!! Please pray for each of them... esp, Grammie and Pappie as they take care of them. We are at a Homewood Suites...we are very pleased. We considered heading to Tahoe today after hearing it was just an hour away. Then realized it is winter there...hehehe....lots of snow, ice, narrow roads etc. Plus, it is nearly 10,000 feet in elevation. I do not think I would respond well to that. I would prefer to see that beautiful crystal clear lake in July! Our plans are to visit a local mall, maybe a movie and PF Chang's for dinner. Nice to relax today as we prepare for what begins tomorrow. The kiddos are doing well and enjoyed are great morning of worship with the family. I heard Rod's message was wonderful as well as the music!! I am to be at the med. center at 8:00 tomorrow it will be a very long day of testing and visits with the Dr.'s. Always draining to have these type of appts. as I have to discuss just how bad I feel. Normally leaves me in tears but, this time I am hoping to receive a confident response from the Dr. for my healing. Love you all! Thank you for my encouraging note on my pillow Deb!! It was a sweet surprise. My son had a note in my purse that read Joshua 1:9 "Have I not commanded you be strong and courageous, do not tremble or be dismayed, for the Lord your God goes with you wherever you go."
CommentsPraise the Lord we have made it to Reno.....I had no idea exactly where it was and how far away it would be. Mom and I did great. Lots of chatting and laughing....special thank you to my honey Michael. You know how to make me smile. And one thing I love the most is watching my mom laughing out loud!!! 2nd flight was quite bumpy but all is well. We are now settled in for the night. Accommodations etc. seem very nice. We will write tomorrow. Blessings. It is going on 3...UGH! This cannot be good. nite nite
CommentsI cannot believe this day is here. There is no way I could possibly describe how I am feeling. For the past year, I have prayed unceasingly for relief and guidance. Now I am about to leave for a great opportunity that not all people with my condition get to experience. This will change my life forever -- how exactly I do not know. But, I do know Who is on the throne and He will carry out His plan. I am very excited to see how it unfolds. Kinda have butterflies but ready to move forward. I know I will have to be braver than ever as I experience the unknown and great physical discomfort, especially while being away. I do believe it's good to be able to have this treatment away. I can just focus on that and rest as I strive to get better. I am thankful my kiddos do not have to see it all and can be in the security of home and loved ones. They will have a wonderful time with their Dad, grandparents and all of their sweet friends who are looking out for them. They have achievement tests at school this week that will certainly keep their attention and get them good and tired. The kids are doing good today...I am very proud of them. Elizabeth started working on thank you cards. Ryan was concerned for Nannie and I going alone out to Nevada. He said they can't go alone without any men to watch over them. Chivalry is still alive!!! Today is full of a lot of hugs and board games, play doh and spending as much time together as possible. Have you ever wanted to slow down time....Please pray for our travel mercies and for our goodbyes at 5:30. Elizabeth will probably not go to the airport. I think Gram and Pap are taking her to Sam's. She cries when I take her to school so, she doesn't think she could handle it...pretty big girl of her. Isaiah 12:2 "Behold, God is my salvation, I will trust and not be afraid; For the Lord God is my strength and song, and He has become my salvation."
CommentsWow, thank you so much for the constant love and encouragement...between this site and facebook it has been so uplifting!! It was a good day. Lots of laughter and a great dinner to celebrate Pappie's birthday!! He was a great sport...gotta see the pictures on facebook. It was very sweet and difficult tucking the kiddos in tonight. I could not hold tears back with the older ones. Their little hearts and minds are full of concerns for my safety and healing. Elizabeth started working on thank you notes...what a great opportunity to see the Lord work!! I have posted verses and lil notes around the house for them. They got a kick out of that!! Oh, and the web cam...wow, we are still figuring that out but will hopefully have it up and running smoothly before I leave. It looks like it will be great fun! Hoping to have a nice day just playing with the kids tomorrow. We head for the airport around 5:30. "And we know that in all things God works for the good of those who love Him, who have been called according to His purpose." Romans 8:28
CommentsOkay, Michael and Tony I totally stink at updates. I will work on it!! I do type in paragraph form but when it comes up on the site it looks like one run on sentence. Today, I have been working on getting packed. Nice to just focus on taking the basics: all comfortable clothes/no jewelry...you get the idea. Started the day with some tears. Elizabeth is struggling a bit and just wants to come and help. It is going to be quite tough getting on that plane after seeing those lil faces. The guys headed out to Best Buy to get a web cam...guess I will be learning how to use that. Should be great for us while I am away! Some of you have asked about the treatment. On Monday, I will be having testing all morning. The Dr. told me to expect to meet with him around noon for at least 2 hours. As far as further details I will just update you as I go. The treatment itself is designed for six weeks. Since I will only be staying for 2 weeks I will have homecare for up to 2 months. I guess it doubles when doing it from home. One day at a time! In His Love, Jodi
CommentsIf you all could see the picture that pops up on my page as I write my updates. It is quite silly of my husband and his buddy who altered it a bit. They keep me laughing!!
Yesterday was spent having lunch with two of my dearest constants in my life. These two dear friends have walked this entire trial with me.
They have listened to my cries, sat with me when that's all I could do, prayed with me, picked up kiddos, made meals and organized so others could do the same,
and sent countless cards and uplifting verses to encourage me to keep looking to Christ and trusting in Him. The daily calls to check in on us have shown
genuine sincerity. Wow -- the Lord knows who to place in our lives at the exact appointed time. My friends have been battling their own personal trials at the same time.
Isn't that how it usually is? We are all struggling with something. It's how we choose to handle and respond to that trial that can make
the difference. It's a great honor to bear with one another's burdens to
encourage each other to seek His righteousness and wisdom. To see that God is not just working in my life faithfully, but is doing marvelous things in the lives of many all over
is awesome. My doctor told me once that this disease was very lonely (lonely has never been a problem for me!) Being a go-getter, I'm not normally sitting back waiting for life to happen. I didn't want to be a victim in this,
but I realized what he was saying. When you hear, "Well, you look great
so you must be feeling good!" "I want what you have based on the looks of it."
"Just take some aspirin." "Why can't you just do this?"
"Why are you canceling the (fill in the activity)?" -- we've heard them all.
It can be quite tough in the moment, but then I realize that folks are just trying to
encourage me. Knowing what to say about something they know so
little about is overwhelming. I love when you all say I look great because this year has taken it's toll on the body.
But, we have certainly become more compassionate knowing that only by
experiencing this on a family level, no one could fully understand. And that's okay. We're hoping through this that you would be more informed of this disease so that when given the chance, you could be a blessing of information or compassion to
those you may meet with the same condition.
This makes me think of my own pride with this trial. I didn't want many to even know about if for years because it was so vague. No one really knew what to do with me.
We thought it was FM for awhile, but my symptoms pointed to something else.
The worst days for me were going to the doctor to find out how sick I really was, but that they didn't know how to fix it. I just got to a point
where this is what my life is -- this is my normal. I have to keep pressing on for myself and my family. All pride
is laid aside now that I have this site and being on facebook for all to have the opportunity to know my personal struggles. But,
PLEASE do not look upon me as a victim. Only by trials do we know what we
believe. I know fully where my strength, joy and peace come from. Learning to live day to day has been an incredible change for me and my family. Why look ahead?
Today has enough worry of it's own -- He will provide for our daily needs. I'm here to say the Lord is exceedingly good in rough times...His grace abounds and peace does enter beyond our
comprehension. May you know Jesus, especially if you're presently struggling.
I should wrap up. It has been lovely here today and I have continued on my girly dates
-- super fun!! Our folks arrived safely today. Yeah!!! Thankfully, all was in order for their
arrival. I will finish tonight saying praise the Lord for the gifts that He
has bestowed upon us! We have received 41 meals from The Heiman's
and Walje's, courtesy of the youth group!! Amazing! It's all delicious and incredibly kind! The kids are
always so affected by all this kindness. We have also received gifts of money toward our treatment. God Bless Lizzie.
After doing a fundraiser at school, she got the idea. Being a little Miss
Fix-it, she told dad, "Let's do something!" Well, she is blown away by all the responses.
Each time she says "this will help mommy with treatment for a whole day." She is right on top of it and jumping up and down with extreme joy. Thank you for caring about us so much and for sharing with us your gifts. We are deeply humbled
and touched by this. In fact, I am not sure we will ever be the same.
CommentsWow,so much to be thankful for. First, thank you sweet Elizabeth and Michael for getting this off the ground. What a great idea! And thank you to my dear friend and brother, Tony Ways for making it a completed and beautiful web-site. It is wonderful! I cannot believe you put that picture of me all geared up on the site...I do know how Michael loves it but how funny. I should know you guys by now!!! Well, I am just a few days away from heading west to Nevada. The medical center called today to confirm I was coming...absolutely, wouldn't miss this opportunity. I feel so blessed to be able to go and receive this treatment. I will try and update you all daily. So far we have spent our week enjoying each other. Monday, was a little rough at first but then it became smooth sailing. My morning was definitley off to a slower start compared to them. When the kids are home all day it is quite obvious to them on my limitations. I wanted to make it a priority to have one on one time with each of them. Thankfully, that is working out great!! We have even had fun coloring eggs and doing some egg hunts...spring is in the air. Tomorrrow our folks arrive from Georgia. Long trip...hope we do a great job welcoming them. I pray it all goes smoothly for them that they do not overdue and get exhausted. I realize what a huge sacrifice it is to come in someone's home and manage food/cleaning/running/homework etc. etc. I know they will do it all unto the Lord and the kids will be so blessed to have them here. My biggest hope is that Michael will be spoiled. It will be great for them to have time with their son too. I do not think I am suppose to write this much...I guess I never run out of things to say or share...hehehe! Bless you all and thank you for all the precious loving support and encouragement you have given us!!! |
